Leadership

Board of Directors

President  
Clinton Moore, Delaware
This email address is being protected from spambots. You need JavaScript enabled to view it.

Executive Director
Christy Greeley, Illinois
This email address is being protected from spambots. You need JavaScript enabled to view it.

Vice President Research
Christy Greeley, Illinois
This email address is being protected from spambots. You need JavaScript enabled to view it.

Vice President Development
Herberth Sigler
This email address is being protected from spambots. You need JavaScript enabled to view it.

Vice President Education and Awareness
Aimee Adelmann
This email address is being protected from spambots. You need JavaScript enabled to view it.

Vice President Family Support
Jen Wyman, Michigan
This email address is being protected from spambots. You need JavaScript enabled to view it.

Secretary
Ina Gardener, Ohio
This email address is being protected from spambots. You need JavaScript enabled to view it.

Treasurer
Jen Sexstone, Ohio
This email address is being protected from spambots. You need JavaScript enabled to view it.


Directors

Carol Hughes, Florida

John Maccarone, New York

Marybeth Krummenacker, New York

Jennifer Loglisci, Massachusetts

Jeff Larimore, South Carolina

Pam Woodward, Utah

Larry Thomas, New York

Anna Pruitt, Tennessee

Gail Potts, South Carolina

Kirsten Stilke, Wisconsin

Dawn Strickland, Florida


Scientific Review Board Chairperson

William A. Gahl, M.D., Ph.D.
Clinical Director, National Human Genome Research Institute, Head, Section on Human Biochemical Genetics, Medical Genetics Branch, Head, Intramural Program, Office of Rare Diseases, National Institutes of Health, Bethesda, Maryland


Scientific Review Board Membership

Frederick Kaskel, M.D., Ph.D.
Professor of Pediatrics, Director, Division & Training Program in Pediatric Nephrology Children's Hospital at Montefiore, Albert Einstein College of Medicine of Yeshiva University , New York

Craig B. Langman, M.D.
Issac A. Abt, M.D. Professor of Kidney Diseases, Feinberg School of Medicine, Northwestern University, Head, Kidney Diseases, Lurie Children's Hospital, Chicago, Illinois

Jess G. Thoene, M.D.
Director, Biochemical Genetics Laboratory, Active Professor Emeritus of Pediatrics, University of Michigan

Robert Kleta, MD, PhD, FASN, FACMG
Professor of Nephrology and Physiology
Potter School of Nephrology
University College London
Royal Free Hospital
London, England
Ann Arbor, MI

Roslyn B. Mannon, M.D.
Professor of Medicine, Division of Nephrology
Professor of Surgery, Division of Transplantation
Director of Research, Alabama Transplant Center
Birmingham, Alabama

Richard H. Simon, M.D.
Professor and Associate Chair for Faculty Affairs
Department of Internal Medicine
Pulmonary and Critical Care Medicine Division
University of Michigan Medical School
Ann Arbor, Michigan


Medical Advisory Committee

Joshua J Zaritsky, MD, PHD
Nemours/Alfred I. duPont Hospital for Children
Wilmington, DE

Corinne Antignac, M.D., Ph.D.
INSERM U574 and Department of Genetics, Paris Descartes Universite, Tour Lavoisier 6 estage,
Necker Hospital, Paris, France

Donald Cairns, Ph.D.
Associate Head of School, School of Pharmacy, The Robert Gordon University, Schoolhill,
Aberdeen, Scotland

Doris A. Trauner, M.D.
Professor, Department of Neurosciences
UCSD School of Medicine
San Diego, California

Ewa Elenberg, M.D.
Pediatric Nephrologist, Texas Children's Hospital
Baylor College of Medicine, Texas

Julie R. Ingelfinger, M.D.
Senior Consultant in Pediatric Nephrology, Mass General Hospital for Children
Professor of Pediatrics, Harvard Medical School Deputy Editor
The New England Journal of Medicine
Boston, Massachusetts

Laurence Greenbaum, M.D., Ph.D.
Marcus Professor of Pediatric Nephrology
Emory University and Children's Healthcare of Atlanta
Atlanta, Georgia

Mihir M. Thacker, M.D.
Department of Orthopaedic Surgery
Alfred I. duPont Hospital for Children
Wilmington, DE

Minnie Sarwal, M.D.
Nephrologist and Director, Pediatric Renal Transplantation
Stanford University, California

Paul Goodyer, M.D.
Montreal Children's Hospital
2300 Tupper Street
Montreal, Quebec, Canada

Rachel Bishop, MD, MPH
CDR, U.S. Public Health Service
Chief, Consult Services Section
National Eye Institute, NIH
Bethesda, MD

Ranjan Dohil, M.D.
Associate Professor, Department of Pediatrics, UCSD School of Medicine,
San Diego, California

Patrick Gipson, M.D.
Clinical Assistant Professor of Internal Medicine & Pediatrics, Division of Nephrology
University of Michigan Medical Center, Ann Arbor, MI

Galina Nesterova, MD,FABMG
National Institutes of Health, National Human Genome Research Institute
Staff Physician/Clinical Biochemical Physician
This email address is being protected from spambots. You need JavaScript enabled to view it.


Professional Advisory Committee

Maya Doyle, MSW, PhD, LCSW-R
Assistant Professor, School of Health Sciences, Department of Social Work
Quinnipiac University, Hamden, CT
Camp Coordinator, Ruth Gottscho Dialysis and Kidney Program at Frost Valley YMCA a program of the Children's Hospital at Montefiore
Bronx, NY

logo

CRN Newsletter Signup - Popup
  1. Stay up-to-date with the latest information from the Cystinosis Research Network by joining our email list.

  2. First Name
    Invalid Input
  3. Last Name
    Invalid Input
  4. You must enter a valid email.