cystinosisrn

Cystinosis: A Blessing and a Burden

In order to think of what Cystinosis Awareness Day means to me I had to think about what cystinosis...

A white blood cell (WBC) test helps monitor cystine levels important in managing cystinosis. Information about the test and...

Health Canada approved the first cysteamine eye drop solution to help people living with cystinosis. Read more…

February 28, 2018 Gear up for Rare Disease Day and request your FREE cystinosis ribbon temporary tattoo and start...

The Cystinosis Ireland Seedcorn Funding scheme aims to provide researchers with the opportunity to generate solid preliminary data which...

Support Bill Brink, an adult living with cystinosis, as he hosts “Stand Up to Cystinosis” a friendly weight lifting...

Living with cystinosis has earned Chandler Moore a few battle wounds. After mulling over a way to symbolize the...

This year, scholarships were provided to four deserving students. Read more

Cystinosis expert, Dr. William Gahl Among Distinguished Inductees Extracted from National Academy of Medicine. Access full article here. The...

RI-MUHC’s researchers increase efforts to eradicate rare genetic disorder in children thanks to Génome Québec and Genome Canada Pulblished...