News

FDA Authorizes Additional COVID-19 Vaccine Dose for Certain Immunocompromised Individuals

Members of the CRN’s Scientific Review Board have compiled articles for those interested in learning more about an additional...

In a quarterly update, AVROBIO announced: “Data from the patients dosed to date across three indications continue to...

The Cystinosis Research Network has announced new board member updates. At the last Board Meeting, the nominating committee proposed...

Today (July 16) the first-ever, 100% online CRN Family Conference begins. Registration is still open so we invite you...

Please click here for the latest updates from Leadiant on the Cystadrops shortage. If you have further questions, please...

Interim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.

The CRN 2021 Family Conference is July 16 – July 18. In response to the COVID-19 pandemic, we’ve decided...

In the late 1970’s, a hospitalization led to a cystinosis diagnosis which was uncommon at the time. Karen, and...

In honor of Cystinosis Awareness Day – May 7 – Leadiant Biosciences is commemorating this event with a letter...

Angel Aid is currently providing free trauma-less needle poke wellness kits for the cystinosis community. Their “Buzzy” kits were...