News

May 2021 Cystaran Update

Please click here for the latest updates from Leadiant on the Cystadrops shortage. If you have further questions, please...

Interim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.

The CRN 2021 Family Conference is July 16 – July 18. In response to the COVID-19 pandemic, we’ve decided...

In the late 1970’s, a hospitalization led to a cystinosis diagnosis which was uncommon at the time. Karen, and...

In honor of Cystinosis Awareness Day – May 7 – Leadiant Biosciences is commemorating this event with a letter...

Angel Aid is currently providing free trauma-less needle poke wellness kits for the cystinosis community. Their “Buzzy” kits were...

On March 8, 2021, the Cystinosis Research Network announced Tim Wyman as the new interim President. The position was...

Cystinosis Ireland and the CRN are delighted to announce they will jointly fund research project entitled “Perturbations in the...

February 12, 2021Dear Cystinosis Community: We wanted to share an update from Leadiant Biosciences regarding the CYSTARAN® (cysteamine ophthalmic...

In Honor of Laura’s 35th Birthday and Rare Disease Day. An article by Marybeth Krummenacker I was trying to...