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Press release originally published May 17, 2022 on Avrobio.com. New early data show key visual motor integration, visual perception...
read moreIn honor of 5th Annual Cystinosis Awareness Day a new global initiative has been announced: the Cystinosis Warrior Impact...
read moreLeadiant, the makers of Cystaran eye drops, are opening up the floor for a Town Hall Q&A on Wednesday,...
read moreClinical researchers from the Stanford Neuromuscular department are looking for individuals who have been diagnosed with Cystinosis Myopathy, to...
read moreCould newborn screening provide a turning point in the natural history of cystinosis? Review the latest publication “Newborn Screening: Review of...
read moreLeadiant Biosciences, Inc. received communication from the FDA that they have approved the new Cystaran bottle and manufacturer. Please...
read moreData from the AVROBIO Phase 1/2 investigational gene therapy for cystinosis was released today at WORLDSymposium in San Diego....
read moreThe Adult Leadership Advisory Board (ALAB) continues their podcast series “Cystinosis Rare: Journey Into the Unknown” with episode 8...
read moreA high-level research update from Ana Francisco, Sophie Molholm, PhD Co-Principal Investigator, John Foxe, PhD Co- Principal Investigator on...
read moreAdvoSci Health hosted a Cystinosis Case Competition this fall semester. Students were tasked with learning foundational information about cystinosis...
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