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AVROBIO: Cystinosis Gene Therapy Update Functional & Clinical Improvements Reported

November 17, 2020 – AVROBIO announced that data suggests functional and clinical improvements for the first cystinosis patient at...

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Update: Cystaran Eye Drop Shortage

As of today, November 12th, AllianceRx Walgreens Prime is unable to fulfill any orders of CYSTARAN. Leadiant’s full announcement...

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New Details Announced: CYSTADROPS U.S. Website Launched

Recordati Rare Diseases Inc., the makers of CYSTADROPS, launched a website to support the launch of the eye treatment...

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CYSTARAN Eye Drop Shortage Anticipated

In a statement from Leadient Biosciences on October 9th, the company announced an availability shortage may impact cystinosis patients...

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Playback – 2020 International Cystinosis Family Conference 

In April, the Cystinosis Network Europe adapted their international conference to the restrictions set forth by COVID-19. The result...

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Recordati Announces Availability of CYSTADROPS in the U.S.

Beginning September 15, 2020, Recordati Rare Diseases announced the availability of CYSTADROPS across the United States. CYSTADROPS are a...

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Announcement from Leadient

To address the shortage of Cystaran eye drops some members of our community may have encountered recently, Leadient Biosciences...

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FDA Approves CYSTADROPS®

Recordati announced approval of an eye drop treatment to reduce corneal crystals. “We are pleased to bring Cystadrops® to...

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Open Registration – 2020 Cystinosis Virtual Meetups

We are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...

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Program to Advance Cystinosis Treatment Options

Partnering with RDMD, this program aims to accelerate cystinosis research to ultimately improve treatment options. We welcome you to...

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