The Dicks Family sat down for a candid conversation with Daniel Levine from Global Genes. During the latest podcast,...
read moreThis summer we reached a milestone – over $40,000 in scholarships awarded since our program’s inception. Congratulations to the...
read moreMembers of the CRN’s Scientific Review Board have compiled articles for those interested in learning more about an additional...
read moreIn a quarterly update, AVROBIO announced: “Data from the patients dosed to date across three indications continue to...
read moreThe Cystinosis Research Network has announced new board member updates. At the last Board Meeting, the nominating committee proposed...
read moreToday (July 16) the first-ever, 100% online CRN Family Conference begins. Registration is still open so we invite you...
read morePlease click here for the latest updates from Leadiant on the Cystadrops shortage. If you have further questions, please...
read moreInterim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.
read moreThe CRN 2021 Family Conference is July 16 – July 18. In response to the COVID-19 pandemic, we’ve decided...
read moreIn the late 1970’s, a hospitalization led to a cystinosis diagnosis which was uncommon at the time. Karen, and...
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