5th Annual Chandler's Chance Christmas Palooza for Cystinosis
Get ready for a night of winter fun!
You are invited! Join the Moore Family for a holiday celebration you won’t soon forget.
Five years ago, Chandler’s Chance started with a road side hot chocolate stand and a little boy’s dream: to help those with Cystinosis. Chandler was diagnosed with Cystinosis, a rare genetic disease at 10 months old. Only 2,000 people in the world have Cystinosis and funding to find a cure is limited.
Inspired by young Chandler, volunteers transform the Moore property into a winter wonderland. Hay rides, fire trucks, face painting, a BB gun shooting gallery, photo booth, a visit from Mr. and Mrs. Claus and live music from the Dirt Road Outlawz are all provided FREE of charge. Food trucks will be on site along with snacks and beverages.
Help us break last year’s record of 500 participants. If you cannot attend, please consider donating to this worthy cause.
What: Chandler’s Chance 5th Annual Christmas Palooza for Cystinosis When: Saturday, December 2nd 5:30pm – 9:00pm Where: 24062 Peterkins Road, Georgetown, DE 19947
For Cystinosis Patient and Families
Before the Chandler’s Chance festivities, bring your loved ones to catch up on the latest Cystinosis updates. This year we will have three physician speakers (below) available to discuss your questions. It is also a great time to connect with the 20 families expected to attend! Travel and lodging funds are available – please RSVP with Clinton Moore at Clintonmoore1@aol.com. See our flyer.
Dr. Joshua J. Zaritsky, Division Chief, Pediatric Nephrology - Nemours A.I. DuPont
Dr. Timothy Bunchman (aka Mustache Man), Professor and Chief, Pediatric Nephrology - Children’s Hospital of Richmond at VCU
Dr. Mihir Thacker, Pediatric Orthopedic Surgery - Nemours A.I. DuPont; Cystinosis Research Network Medical Advisory Board
Who: Cystinosis individuals and families What: 3rd Annual Nemours Family Cystinosis Day When: Saturday, December 2nd 10:00am – 3:30pm Where: The Clubhouse at Baywood, 32267 Clubhouse Way, Long Neck, DE 19966 Hosts: Clinton Moore, Annie Moore, Jill Emerson, Clay Emerson