We are here to provide support and assistance to families and individuals with cystinosis and educate communities about our disease.
There are a number of ways to get in contact depending on your needs and comfort level: complete the form below, call, email, or write us a letter. Thank you for your interest and we will be in touch shortly.
Cystinosis Research Network
P.O. Box 702
Lake Forest, IL 60045 USA
Phone: 847-735-0471
Email: info@cystinosis.org