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X-WR-CALDESC:Events for Cystinosis Research Network
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DTSTART;TZID=UTC:20261006T200000
DTEND;TZID=UTC:20261006T210000
DTSTAMP:20260814T175721Z
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SUMMARY:October Zoom Night - Cystinosis and Aging
DESCRIPTION:Aging with cystinosis brings new questions\, challenges\, and experiences. Co-hosts Cheryl and Hannah (living with cystinosis) will dive into topics inspired by ongoing conversations happening now across the cystinosis community. Please add to your calendars and follow us here and on socials for updates.\n\n\n\nOct 6 @ 8p et / 7p ct / 5p pt\nSave/use this link to join
URL:https://cystinosis.org/event/october-zoom-night-cystinosis-and-aging/
CATEGORIES:Gatherings/Conferences
ORGANIZER;CN="Cystinosis Research Network":MAILTO:info@cystinosis.org
LOCATION:https://cystinosis.org/event/october-zoom-night-cystinosis-and-aging/
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DTSTART;TZID=UTC:20261113T080000
DTEND;TZID=UTC:20261113T180000
DTSTAMP:20260819T153813Z
CREATED:20260814T172623Z
LAST-MODIFIED:20260819T153813Z
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SUMMARY:CRN Scientific Symposium
DESCRIPTION:The Cystinosis Research Network will host a Scientific Symposium in Ann Arbor\, MI\, bringing together researchers\, clinicians\, and various professionals interested in advancing cystinosis care. We are honored to welcome Dr. Elizabeth Ames as Chair for the event. \nAdditional details including agenda and registration will be announced shortly. \nTo be notified when registration opens\, please email info@cystinosis.org or check back soon. \n 
URL:https://cystinosis.org/event/2026symposium/
LOCATION:Weber’s Hotel Ann Arbor\, MI\, 3050 Jackson Avenue\, Ann Arbor\, MI\, 48103\, United States
CATEGORIES:Gatherings/Conferences
ORGANIZER;CN="Cystinosis Research Network":MAILTO:info@cystinosis.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20270722
DTEND;VALUE=DATE:20270725
DTSTAMP:20260505T234306Z
CREATED:20260429T155749Z
LAST-MODIFIED:20260505T234306Z
UID:9164-1816214400-1816473599@cystinosis.org
SUMMARY:2027 CRN Family Conference
DESCRIPTION:Join us in the heart of Uptown Charlotte.\nCRN Family Conferences draw some of the largest gatherings of cystinosis families in the world. The weekend-long agenda creates a space for connection\, learning\, and shared experience for each member of the family. \nSave the dates!\nTo stay informed about registration\, scholarships\, and updates\, email info@cystinosis.org or send us a DM on social media with CLT2027 and your email address. \nMore details coming soon\, be sure to check back as the program takes shape.
URL:https://cystinosis.org/event/2027-crn-conf/
LOCATION:Charlotte Marriott City Center\, 100 West Trade Street\, Charlotte\, NC\, 28202\, United States
CATEGORIES:Gatherings/Conferences
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ORGANIZER;CN="Cystinosis Research Network":MAILTO:info@cystinosis.org
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