2017 CRN Family Conference

Conference Agenda

2017 Family Conference Agenda

Hotel and Room Reservations

Snowbird Ski and Summer Resort is located 20 miles from Salt Lake City, Utah at 9385 S. Snowbird Center Drive, Snowbird, UT 84092-9000.

Snowbird Insta

Discounted room rates are:

Cliff Lodge - Bedroom                                      $ 119.00*
Lodge at Snowbird - Bedroom                          $ 99.00*
Lodge at Snowbird - Efficiency                          $ 99.00*
Lodge at Snowbird - One Bedroom Condo        $ 169.00*
Lodge at Snowbird-One Bedrm Condo w/Loft    $ 239.00*
The Inn - One Bedroom Condo                         $ 169.00*

Book your room online at http://bit.ly/2o1bAMU or call 1-800-453-3000.
Check-in: 4:00 pm / Check-out: 11:00 am
Parking at the resort is free.

*To receive the discounted room rates above, place your reservations before June 11th using online group code CRN or mention CRN Family Conference by phone. After June 11th, rates are subject to change based on availability.

Travel and Ground Transportation

Salt Lake City International (SLC) Airport is closest to the Snowbird Resort. Canyon Transportation is the best value from SLC airport at $72.00/adult (13 and up) and $48.00/child (12 and under). Call to reserve your ride 1-800-453-3000.

Conference Registration and Fees

Register online using the button below. Registration fees are $75 per individual/household after June 1st.

You also have the option to print, complete, and mail this form along with the registration fee check to CRN Conference Committee – Attn: Pam Woodward, 1368 W. 2600 N., Pleasant Grove, UT 84062.

Please make checks payable to: Cystinosis Research Network


Childcare and Youth Program (ages 0-18)

This year the CRN is offering unique childcare and youth programs for our Cystinosis families throughout the conference. This includes teaming up by age for games, crafts, activities, snacks, positive discussions about Cystinosis, and exploring the resort. Learn more.

Conference Scholarships

Conference Scholarships are open to individuals and families affected by Cystinosis who are attending the conference with the exception of Scholarship Committee members. Scholarships will be awarded based specific criteria and are limited to one per household. The 2017 application window is now closed. Questions? Contact Jenni Sexstone at This email address is being protected from spambots. You need JavaScript enabled to view it..

Download Scholarship Description 

Download Scholarship Application 



Information for Professionals

If you are a speaker interested in attending the CRN 2017 Family Conference, please complete the registration form below and return to Dana Marshall.

Download Speaker Registration Form 

We are interested in receiving posters covering one of three categories: Research/Clinical, Industry/Advocacy, or Patient Family by June 15th. Details available below.

Download Poster Session Requirements

Time and Place

Event Date 07-13-2017
Event End Date 07-15-2017
Individual Price $75.00
We are no longer accepting registration for this event


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