2017 CRN Family Conference

The Cystinosis Research Network 2017 Family Conference will be held July 13 – 15 at the Snowbird Ski and Summer Resort located in Utah.

crn 2017 conference

Join us “soar to new heights” learning about the latest updates in Cystinosis research through lectures, workshops, poster sessions, and medical and patient panels. There will also be opportunities to socialize with other patients and families which will provide valuable connections and friendships that will last a lifetime. This is a great chance to meet others who are walking in your shoes and also renew prior friendships. The family conference brings families and the medical community together to share hope and support.


Located up Little Cottonwood Canyon in the beautiful Wasatch Mountains, the resort has something for everyone. The lodging will include the Cliff Lodge, which is a hotel, and also the Lodge at Snowbird which are condos equipped with kitchens. There are lots of activities including hiking, fishing, river rafting, the Cliff Spa, Mountain Coaster, Alpine Slide, Mountain Flyer, Vertical Drop, Ropes Course, Climbing Wall, Bungee Trampoline, Aerial Tram, Peruvian Chairlift, and taking in the spectacular views! Getting to the Resort is easy, the Salt Lake International airport is only 30 minutes away. Special room rates have been negotiated for conference attendees. For an idea of overall conference costs, click here. Conference scholarships are limited and will be offered soon. Here are ideas to offset conference expenses. For more information about the resort please visit their website at www.snowbird.com.


Registration materials will be available soon. Please check back at the end of March.

We look forward to seeing you in Snowbird in July 2017!

Time and Place

Event Date 07-13-2017
Event End Date 07-15-2017


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