2019 CRN Conference set for Philadelphia

Ring in the future with us at the 2019 Family Conference to be held July 18 – 20, 2019 at the Hilton Philadelphia at Penn’s Landing. Please plan to join us to reconnect and learn more about new research findings, receive updates from cystinosis organizations from around the world, meet and renew friendships with other families, have the opportunity to participate in research studies, and interact one on one with many of the world expert clinicians treating and researching cystinosis.


The Hilton Philadelphia at Penn’s Landing is a newly renovated property, the only hotel on Philadelphia's beautiful waterfront in the historic district. They offer an indoor pool, lobby bar, 24-hour coffee shop and waterfront dining at Keating's Rope & Anchor, Bar + Kitchen. Walk to Philadelphia attractions including the Liberty Bell, Independence Hall, Museum of the American Revolution and Blue Cross Riverrink Summerfest. For more information on the hotel please visit their website.


Registration materials will be available in early 2019 on this website and will also be mailed to families. Special room rates have been negotiated with the hotel and will be made available to conference attendees. Check out the conference announcement for a glimpse of historic City Hall.

We look forward to seeing you in Philadelphia in July 2019!

Time and Place

Event Date 04-26-2018
Event End Date 07-20-2019


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