The Cystinosis Research Network is pleased to announce that its 2017 Family Conference will be held July 13 – 15 at the Snowbird Ski and Summer Resort located in Utah. The theme, Soaring To New Heights, hopes to inspire families and researchers alike. Artist and young adult with Cystinosis, Steven Schleuder, created this year's logo with the majestic Wasatch Mountains in mind.
We hope you will plan to join us and learn about the latest updates in Cystinosis research through lectures, workshops, poster sessions, and medical and patient panels. There will also be opportunities to socialize with other patients and families which will provide valuable connections and friendships that will last a lifetime. This is a great chance to meet others who are walking in your shoes and also renew prior friendships. CRN is committed to providing family support to those living with Cystinosis. The family conference brings families and the medical community together to share hope and support.