Ring in the future with us at the 2019 Family Conference to be held July 18 – 20, 2019 at the Hilton Philadelphia at Penn’s Landing. Please plan to join us to reconnect and learn more about new research findings, receive updates from cystinosis organizations from around the world, meet and renew friendships with other families, have the opportunity to participate in research studies, and interact one on one with many of the world expert clinicians treating and researching cystinosis.
The CRN 2017 Family Conference July 13 – July 15 at the Snowbird Ski and Sumer Resort in Utah.
“Soar to new heights” as we learn about the latest updates in Cystinosis research while connecting with patients and families who are walking in your shoes. The conference brings families and the medical community together to share hope and support.
Now you can access presentations from the conference through the CRN YouTube channel:
Dr. Joshua Zaritsky and Dr. Craig Langman - Cystinosis Past and Present
Research Updates from Doctors Jennifer Simpson, Elena Levtchenko, Ewa Elenberg, and Galina Nesterova
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We are no longer accepting registration for this event
CRN 2015 Family Conference to take place in Chicago, IL
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Cystinosis Research Network302 Whytegate CourtLake Forest, IL 60045 USA
Phone: 847-735-0471Toll Free: 866-276-3669Fax: 847-235-2773
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