The Cystinosis Research Network 2017 Family Conference will be held July 13 – 15 at the Snowbird Ski and Summer Resort located in Utah.
Join us “soar to new heights” learning about the latest updates in Cystinosis research through lectures, workshops, poster sessions, and medical and patient panels. There will also be opportunities to socialize with other patients and families which will provide valuable connections and friendships that will last a lifetime. This is a great chance to meet others who are walking in your shoes and also renew prior friendships. The family conference brings families and the medical community together to share hope and support.