Conferences

The Cystinosis Research Network is pleased to announce that its 2017 Family Conference will be held July 13 – 15 at the Snowbird Ski and Summer Resort located in Utah.

We hope you will plan to join us and learn about the latest updates in Cystinosis research through lectures, workshops, poster sessions, and medical and patient panels. There will also be opportunities to socialize with other patients and families which will provide valuable connections and friendships that will last a lifetime. This is a great chance to meet others who are walking in your shoes and also renew prior friendships. CRN is committed to providing family support to those living with Cystinosis. The family conference brings families and the medical community together to share hope and support.

Located up Little Cottonwood Canyon in the beautiful Wasatch Mountains, the resort has something for everyone. The lodging will include the Cliff Lodge, which is a hotel, and also the Lodge at Snowbird which are condos equipped with kitchens. There are lots of activities including Mountain Coaster, Alpine Slide, Mountain Flyer, Vertical Drop, Ropes Course, Climbing Wall, Bungee Trampoline, Aerial Tram and Peruvian Chairlift. Getting to the Resort is easy, the Salt Lake International airport is only 30 minutes away. For more information about the resort please visit their website at www.snowbird.com

Registration materials will be available in early 2017 on the CRN website and will also be mailed to families. Special room rates have been negotiated and will be made available to conference attendees.

We look forward to seeing you in Snowbird in July 2017!

Event Date 07-13-2017
Event End Date 07-15-2017

CRN 2015 Family Conference to take place in Chicago, IL

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We are no longer accepting registration for this event

Event Date 07-16-2015
Event End Date 07-18-2015
Individual Price $75.00

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We are no longer accepting registration for this event

Event Date 07-18-2013
Event End Date 07-20-2013

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We are no longer accepting registration for this event

Event Date 07-14-2011
Event End Date 07-17-2011
Event Date 07-16-2009
Event End Date 07-19-2009
Event Date 07-19-2007
Event End Date 07-22-2007