Family Gatherings

Cystinosis Families Planning Annual Midwest Gathering in July

Cystinosis families living in the Midwest are busy planning their annual gathering of friends, family and fellowship. This year marks the 25th anniversary of the event. This year’s event will be held on July 18th-20th in Cedar Rapids, Iowa.

Anyone is welcome to attend even if you do not live in the Midwest. For more information about the event and hotel accommodations contact Doretta Hoffmann at 515-733-4437.   Many who have attended in the past return each year to renew the bonds of friendship. Please consider joining in.

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