Family Gatherings

Dinner and Discussion on Cystinosis - Saturday, August 16, 2014

The Cystinosis Research Network cordially invites you and your family to join us for:

Dinner and Discussion on Cystinosis

Saturday, August 16, 2014

Maggiano’s Little Italy
3106 West End Avenue
Nashville, TN 37203

5:30 PM appetizers / 6:30 PM dinner and presentation

Question and answer session to follow

Guest Speaker:
Bettina Ault, MD, Pediatric Nephrologist
”A Bold Step Forward . . . . . Transitioning from Pediatric to Adult Care for Cystinosis”

Representatives from Raptor Pharmaceuticals and Sigma Tau Pharmaceuticals will be in attendance to answer questions regarding Procysbi® and Cystaran™.

Please RSVP by August 11th to Dana Marshall via e-mail : This email address is being protected from spambots. You need JavaScript enabled to view it.or via phone: 415-320-3537

Please specify the number of attendees, ages of children, food allergies or dietary restrictions.

Dinner provided by an unrestricted educational grant from Raptor Pharmaceuticals.

Download the PDF


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