Family Gatherings

Dinner and Discussion on Cystinosis - Saturday, March 7, 2015

The Cystinosis Research Network cordially invites you and your family to join us for:

Dinner and Discussion on Cystinosis

Saturday, March 7, 2015

Hilton University Place
8629 JM Keynes Drive
Charlotte, NC 28262

5:30 PM appetizers / 6:30 PM dinner and presentation
Question and answer session to follow

Guest Speaker:

Galina Nesterova, M.D.
Staff Clinician Pediatrics, Genetics and Biochemical Genetics
National Human Genome Research Institute/ National Institutes of Health
“Managing Cystinosis from a Clinical Perspective”

Representatives from Raptor Pharmaceuticals and Sigma Tau Pharmaceuticals will be in attendance to answer questions regarding Procysbi® and Cystaran™.

Please RSVP by March 1st to Dana Marshall
via e-mail : This email address is being protected from spambots. You need JavaScript enabled to view it.
via phone: 415-320-3537
Please specify the number of attendees, ages of children, food allergies or dietary restrictions.

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