The Cystinosis Research Network cordially invites you and your family to join us for:
Dinner and Discussion on Cystinosis
Saturday, March 7, 2015
Hilton University Place
8629 JM Keynes Drive
Charlotte, NC 28262
5:30 PM appetizers / 6:30 PM dinner and presentation
Question and answer session to follow
Galina Nesterova, M.D.
Staff Clinician Pediatrics, Genetics and Biochemical Genetics
National Human Genome Research Institute/ National Institutes of Health
“Managing Cystinosis from a Clinical Perspective”
Representatives from Raptor Pharmaceuticals and Sigma Tau Pharmaceuticals will be in attendance to answer questions regarding Procysbi® and Cystaran™.
Please RSVP by March 1st to Dana Marshall
via phone: 415-320-3537
Please specify the number of attendees, ages of children, food allergies or dietary restrictions.