Family Gatherings

Luncheon and Discussion on Cystinosis in Los Angeles

The Cystinosis Research Network cordially invites you and your family to join us for:

Luncheon and Discussion on Cystinosis

Sunday, September 27, 2015
W Los Angeles - Westwood
930 Hilgard Avenue, Los Angeles, CA 90024
11:30 AM Reception / 12:30 PM Luncheon and Presentation
Question and Answer Session to Follow

Guest Speaker:
Ora Yadin, M.D.
Professor of Pediatrics
Pediatric Nephrology
UCLA Mattel Children’s Hospital

Representatives will be in attendance to answer questions regarding:
PROCYSBI® (cysteamine bitartrate) delayed-release capsules
and Cystaran® (cysteamine ophthalmic solution)

Please RSVP by September 20th to Dana Marshall
via e-mail : This email address is being protected from spambots. You need JavaScript enabled to view it.
or via phone: 415-320-3537

Please specify the number of attendees, ages of children,
food allergies or dietary restrictions.

A limited number of scholarships are available to individuals and families affected by cystinosis to assist with hotel accommodations or travel.
Click here to download the application form & submission instructions.

Program provided by an unrestricted educational grant from Raptor Pharmaceuticals.
PROCYSBI® is a registered trademark of Raptor Pharmaceuticals Inc.
CYSTARAN® is a registered trademark of Sigma-Tau Pharmaceuticals, Inc.


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