Family Gatherings

Rare Lysosomal Diseases Gathering

Cystinosis families are invited to hear Dr. Grimm present updates on Cystinosis at the WORLDfair 2016 in Minneapolis, MN on Oct. 1, 2016.

Focus on Rare Lysosomal Diseasesdr paul grimm

Cystinosis expert, Dr. Paul Grimm, will be presenting updates on nephropathic Cystinosis. This is a great opportunity for families in the Minnesota, North Dakota, South Dakota, Iowa, and Wisconsin areas. Click here for the full agenda and details. Questions or to register, call 612-617-3565 or email This email address is being protected from spambots. You need JavaScript enabled to view it..

Host: Fairview Pharmacy Services
Who: Patients, families, friends, healthcare providers, and support groups focused on rare lysosomal diseases such as Cystinosis
What: Discussions from experts and experienced individuals regarding gene therapy, safety and effectiveness of past trials/the impact on future trials, and compliance issues and how to manage the disease
When: Saturday, October 1st, 2016
Where: University of Minnesota, McNamara Center (200 Oak St. SE, Minneapolis, MN 55414)
Cost: Free


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