Cystinosis families are invited to hear Dr. Grimm present updates on Cystinosis at the WORLDfair 2016 in Minneapolis, MN on Oct. 1, 2016.
Focus on Rare Lysosomal Diseases
Host: Fairview Pharmacy Services
Who: Patients, families, friends, healthcare providers, and support groups focused on rare lysosomal diseases such as Cystinosis
What: Discussions from experts and experienced individuals regarding gene therapy, safety and effectiveness of past trials/the impact on future trials, and compliance issues and how to manage the disease
When: Saturday, October 1st, 2016
Where: University of Minnesota, McNamara Center (200 Oak St. SE, Minneapolis, MN 55414)