Fundraising Events

Logo
This year the 9th annual Cystinosis Charity Golf event has a personal connection to C.H. Robinson. On June 6th 2015 Lola Long, daughter of Information Technology Manager Jim Long will be our honored guest. Lola was diagnosed in 2013 with cystinosis. I am privileged, as a member of the CRN board, to have assisted Jim and his wife Melissa connect with CRN. Over the last few months Jim and I have spoken about the event and how his family could be involved. While I know the gauntlet of managing expenses is always present in business and our personal lives, I ask for your consideration this year to participate in any way you can. 

Event Date 06-06-2015

We are no longer accepting registration for this event

Event Date 12-06-2014
Event End Date 12-06-2014
Cut off date 12-06-2014

Hi All!

I've been dreaming of this day for MONTHS! Today is a miracle, the tee shop is now OPEN! I've teamed up with my favorite graphic designers Olive Lane and Danielle Burkleo of Take Heart to bring you graphic tees celebrating 20 years since my kidney transplant and to raise funds for the Cystinosis Research Network! All items are on pre-order and $5 from every sale will be donated!

http://todayisamiracle.bigcartel.com

Thank you!

Feel free to contact me directly with any questions. This email address is being protected from spambots. You need JavaScript enabled to view it.

Tahnie
http://ahappygirl.com

Event Date 12-01-2014
top-banner

We are running the Hot Chocolate 5k/15k Race in Chicago for the Cystinosis Research Network. On November 9th, we will proudly run in honor of Mason and in loving memory of Livia Grace.

We are asking for your support in the hopes the money we can raise will aid in research and help many families with children diagnosed with Cystinosis.

Event Date 11-09-2014