Fundraising Events

Hi All!

I've been dreaming of this day for MONTHS! Today is a miracle, the tee shop is now OPEN! I've teamed up with my favorite graphic designers Olive Lane and Danielle Burkleo of Take Heart to bring you graphic tees celebrating 20 years since my kidney transplant and to raise funds for the Cystinosis Research Network! All items are on pre-order and $5 from every sale will be donated!

Thank you!

Feel free to contact me directly with any questions. This email address is being protected from spambots. You need JavaScript enabled to view it.


Event Date 12-01-2014

We are running the Hot Chocolate 5k/15k Race in Chicago for the Cystinosis Research Network. On November 9th, we will proudly run in honor of Mason and in loving memory of Livia Grace.

We are asking for your support in the hopes the money we can raise will aid in research and help many families with children diagnosed with Cystinosis.

Event Date 11-09-2014


CRN Newsletter Signup - Popup
  1. Stay up-to-date with the latest information from the Cystinosis Research Network by joining our email list.

  2. First Name
    Invalid Input
  3. Last Name
    Invalid Input
  4. You must enter a valid email.