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X-WR-CALDESC:Events for Cystinosis Research Network
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DTSTART;TZID=UTC:20260623T190000
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SUMMARY:Family Zoom Night - June
DESCRIPTION:What’s on your mind? Let’s talk! \nJoin us on Tuesday\, June 23rd for a Cystinosis Zoom Night. This is a welcome space open to everyone impacted by cystinosis. We will share what is troubling us\, celebrate our wins\, ask questions\, and most importantly\, connect with others.  \n\nJune 23\, 2026\n7:00pm Eastern\nHost: Chelsea Meschke\, VP of Family Support \nJoin the Zoom call at https://tinyurl.com/m3emt2s7\n\nIf you have any questions\, email Chelsea at chelseam@cystinosis.org. We look forward to seeing you then.
URL:https://cystinosis.org/event/family-zoom-night-june/
CATEGORIES:Gatherings/Conferences
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260703
DTEND;VALUE=DATE:20260705
DTSTAMP:20250904T141654Z
CREATED:20250904T141319Z
LAST-MODIFIED:20250904T141654Z
UID:5061-1783036800-1783209599@cystinosis.org
SUMMARY:2026 Cystinosis Network Europe International Conference
DESCRIPTION:Cystinosis Ireland hosts the Cystinosis Network Europe’s International Conference on July 3\, 2026. The Dublin event offers scientific and family sessions\, child care\, time for socialization and translation for seven different languages. For details\, go to https://www.cystinosis-europe.eu.
URL:https://cystinosis.org/event/cne-international-conference-2/
LOCATION:Royal Marine Hotel\, Dun Laoghaire\, Dublin\, Ireland
CATEGORIES:Gatherings/Conferences
ATTACH;FMTTYPE=image/png:https://cystinosis.org/wp-content/uploads/2025/09/CNE-2026-conference-announcement-1-year-out-.png
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260811T200000
DTEND;TZID=America/New_York:20260811T210000
DTSTAMP:20260809T155950Z
CREATED:20260809T155950Z
LAST-MODIFIED:20260809T155950Z
UID:15523-1786478400-1786482000@cystinosis.org
SUMMARY:August Zoom Call
DESCRIPTION:August cystinosis Zoom call discussions will be shaped by your questions and priorities.  \nChelsea Meschke\, VP of Family Support\, is our host on August 11 at 8p ET / 7p CT / 5p PT. Use this direct link to join the meeting: https://tinyurl.com/mw2437j2
URL:https://cystinosis.org/event/august-zoom-call/
CATEGORIES:Gatherings/Conferences
ORGANIZER;CN="Cystinosis Research Network":MAILTO:info@cystinosis.org
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DTSTART;TZID=UTC:20261006T200000
DTEND;TZID=UTC:20261006T210000
DTSTAMP:20260814T175721Z
CREATED:20260814T175721Z
LAST-MODIFIED:20260814T175721Z
UID:16003-1791316800-1791320400@cystinosis.org
SUMMARY:October Zoom Night - Cystinosis and Aging
DESCRIPTION:Aging with cystinosis brings new questions\, challenges\, and experiences. Co-hosts Cheryl and Hannah (living with cystinosis) will dive into topics inspired by ongoing conversations happening now across the cystinosis community. Please add to your calendars and follow us here and on socials for updates.\n\n\n\nOct 6 @ 8p et / 7p ct / 5p pt\nSave/use this link to join
URL:https://cystinosis.org/event/october-zoom-night-cystinosis-and-aging/
CATEGORIES:Gatherings/Conferences
ORGANIZER;CN="Cystinosis Research Network":MAILTO:info@cystinosis.org
LOCATION:https://cystinosis.org/event/october-zoom-night-cystinosis-and-aging/
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DTSTART;TZID=UTC:20261113T080000
DTEND;TZID=UTC:20261113T080000
DTSTAMP:20260814T172623Z
CREATED:20260814T172623Z
LAST-MODIFIED:20260814T172623Z
UID:15992-1794556800-1794556800@cystinosis.org
SUMMARY:CRN Scientific Symposium
DESCRIPTION:The Cystinosis Research Network will host a Scientific Symposium in Ann Arbor\, MI\, bringing together researchers\, clinicians\, and various professionals interested in advancing cystinosis care. We are honored to welcome Dr. Elizabeth Ames as Chair for the event. \nAdditional details including agenda and registration coming soon. \nTo be notified when registration opens\, please email info@cystinosis.org or check back soon. \n 
URL:https://cystinosis.org/event/crn-scientific-symposium/
LOCATION:Weber’s Hotel Ann Arbor\, MI\, 3050 Jackson Avenue\, Ann Arbor\, MI\, 48103\, United States
CATEGORIES:Gatherings/Conferences
ORGANIZER;CN="Cystinosis Research Network":MAILTO:info@cystinosis.org
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20270722
DTEND;VALUE=DATE:20270725
DTSTAMP:20260505T234306Z
CREATED:20260429T155749Z
LAST-MODIFIED:20260505T234306Z
UID:9164-1816214400-1816473599@cystinosis.org
SUMMARY:2027 CRN Family Conference
DESCRIPTION:Join us in the heart of Uptown Charlotte.\nCRN Family Conferences draw some of the largest gatherings of cystinosis families in the world. The weekend-long agenda creates a space for connection\, learning\, and shared experience for each member of the family. \nSave the dates!\nTo stay informed about registration\, scholarships\, and updates\, email info@cystinosis.org or send us a DM on social media with CLT2027 and your email address. \nMore details coming soon\, be sure to check back as the program takes shape.
URL:https://cystinosis.org/event/2027-crn-conf/
LOCATION:Charlotte Marriott City Center\, 100 West Trade Street\, Charlotte\, NC\, 28202\, United States
CATEGORIES:Gatherings/Conferences
ATTACH;FMTTYPE=image/png:https://cystinosis.org/wp-content/uploads/2026/04/CRNlogo_16_9.png
ORGANIZER;CN="Cystinosis Research Network":MAILTO:info@cystinosis.org
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