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X-WR-CALDESC:Events for Cystinosis Research Network
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DTSTART;VALUE=DATE:20200507
DTEND;VALUE=DATE:20200508
DTSTAMP:20260404T194149
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SUMMARY:Podcast Discussion: Coping with Loss & Grief
DESCRIPTION:The next topic in the Adult Leadership Advisory Board’s (ALAB’s) podcast series focuses on coping with loss and grief. This is the second installment of the series – Cystinosis Rare: A Journey into the Unknown. \nThe podcast will be published on YouTube on Cystinosis Awareness Day\, May 7th. \nOur featured guest and episode leader is Maya Doyle.\nPartnering with the cystinosis community for over a decade\, Maya is a professor and certified social worker (CSW) specializing in nephrology. Her unique background and set of experiences will make this a conversation you do not want to miss! \nIn preparation for the podcast recording\, please send any questions for Maya or thoughts you’d like to add by emailing Jana at jana_healy752@hotmail.com. Emails will be accepted through April 15th. Your names will be kept confidential and will not be mentioned during the episode. \nSubscribe to our YouTube page and receive an email alert when the podcast is available: http://bit.ly/2Y28tsx on Thursday\, May 7th. We hope you tune in!
URL:https://cystinosis.org/event/lossgrief/
CATEGORIES:Gatherings/Conferences
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