BEGIN:VCALENDAR
VERSION:2.0
PRODID:-//Cystinosis Research Network - ECPv6.16.1//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-WR-CALNAME:Cystinosis Research Network
X-ORIGINAL-URL:https://cystinosis.org
X-WR-CALDESC:Events for Cystinosis Research Network
REFRESH-INTERVAL;VALUE=DURATION:PT1H
X-Robots-Tag:noindex
X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20190101T000000
END:STANDARD
END:VTIMEZONE
BEGIN:VEVENT
DTSTART;TZID=UTC:20250318T190000
DTEND;TZID=UTC:20250318T203000
DTSTAMP:20260517T005135
CREATED:20250305T203850Z
LAST-MODIFIED:20250305T204109Z
UID:4900-1742324400-1742329800@cystinosis.org
SUMMARY:Family Zoom Night - March
DESCRIPTION:Join us this March as Family Zoom Night returns! This welcoming space is open to anyone impacted by cystinosis to share experiences\, ask questions\, and connect with others. Led by our Vice President of Family Support\, Chelsea Meschke. \n\nMarch 18\, 2025\n7:00pm Eastern\nFor Zoom access\, visit https://tinyurl.com/t6zek7b2\n\nEmail Chelsea with any questions at chelseam@cystinosis.org.
URL:https://cystinosis.org/event/family-zoom-night-march/
CATEGORIES:Gatherings/Conferences
ORGANIZER;CN="Cystinosis Research Network":MAILTO:info@cystinosis.org
LOCATION:https://cystinosis.org/event/family-zoom-night-march/
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200919T170000
DTEND;TZID=UTC:20200919T183000
DTSTAMP:20260517T005135
CREATED:20200917T152146Z
LAST-MODIFIED:20200917T152146Z
UID:2570-1600534800-1600540200@cystinosis.org
SUMMARY:Caregivers Connect: Virtual Meetup
DESCRIPTION:Caregivers of children with cystinosis under 18 years old are invited.\nJoin us for a video conference to connect with other caregivers. This is a free networking opportunity. Register at https://us02web.zoom.us/meeting/register/tZUpde2tqj8uH9yGl5nmGG6v1TvprXaLgtOV.\n\nFREE welcome kits – limited availability.\nWe hope to see you there!
URL:https://cystinosis.org/event/caregivers-connect-virtual-meetup/
ATTACH;FMTTYPE=image/png:https://cystinosis.org/wp-content/uploads/2020/09/Caregivers_18condensed.png
END:VEVENT
END:VCALENDAR