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PRODID:-//Cystinosis Research Network - ECPv6.18.3//NONSGML v1.0//EN
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METHOD:PUBLISH
X-ORIGINAL-URL:https://cystinosis.org
X-WR-CALDESC:Events for Cystinosis Research Network
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TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20190101T000000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20230713
DTEND;VALUE=DATE:20230716
DTSTAMP:20230227T222541Z
CREATED:20220810T155023Z
LAST-MODIFIED:20230227T222541Z
UID:3938-1689206400-1689465599@cystinosis.org
SUMMARY:2023 Family Conference - Nashville
DESCRIPTION:The CRN Family Conference is back…and in-person for the summer of 2023. Join us July 13 – July 15 in Nashville\, Tennessee. The event will take place at the Nashville Marriott at Vanderbilt University. \nFor agenda\, travel scholarships and more details\, click here. \nWe look forward to seeing you there!
URL:https://cystinosis.org/event/2023-family-conference-dates-location/
LOCATION:Nashville Marriott at Vanderbilt University\, 2555 West End Avenue\, Nashville\, TN\, 37203\, United States
CATEGORIES:Gatherings/Conferences
ORGANIZER;CN="Cystinosis Research Network":MAILTO:info@cystinosis.org
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210501T160000
DTEND;TZID=UTC:20210501T170000
DTSTAMP:20210514T161523Z
CREATED:20210429T031943Z
LAST-MODIFIED:20210514T161523Z
UID:3175-1619884800-1619888400@cystinosis.org
SUMMARY:Cystinosis Session: May Video Call
DESCRIPTION:The Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on May 1st at 4pm ET. \nThe Cystinosis Session is open to all who would like to engage in and/or listen to conversation around the following topics: \n\nCaregivers. What happens when they pass?\nWills\nEmployment\nand More\n\nJoin Zoom Meeting\nhttps://zoom.us/j/2663523786\nMeeting ID: 266 352 3786 \nHere are instructions to help with downloading Zoom. We recommend completing these steps prior to the call. \n\nSecure access to a mobile device (PC\, Apple\, Android)\, desktop or laptop computer\nEnsure reliable internet connection\nDownload Zoom Cloud Meetings here or through your device’s app store\nClick on the link https://zoom.us/j/2663523786\nHave the Meeting ID ready: 266 352 3786. If you use the link provided\, the meeting ID is not needed.\n\nAdd the meeting to your calendar by clicking one of the buttons below. \n  \n  \n 
URL:https://cystinosis.org/event/cystinosis-session-may-video-call/
LOCATION:TN
ATTACH;FMTTYPE=image/png:https://cystinosis.org/wp-content/uploads/2020/03/Logo_Header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20200711T160000
DTEND;TZID=UTC:20200711T173000
DTSTAMP:20200711T133417Z
CREATED:20200711T133417Z
LAST-MODIFIED:20200711T133417Z
UID:2484-1594483200-1594488600@cystinosis.org
SUMMARY:Cystinosis Sessions: Mental Health
DESCRIPTION:The forth live video conference hosted by the Adult Leadership Advisory Board (ALAB) will discuss Mental Health\, Anxiety\, Depression\, and Coping. Our featured guest is Maya Doyle\, MSW\, PhD\, LCSW. We look forward to seeing you at 4pm ET on July 11th. \nJoin Zoom Meeting\nhttps://zoom.us/j/2663523786 \nMeeting ID: 266 352 3786 \nZoom Meetings Instructions \nDesktop\, laptop or mobile device (PC\, Apple\, Android)\nReliable internet\nDownload Zoom Cloud Meetings Here or your devices app store\nClick on the above and have the Meeting ID ready\, if you use the link provided\, the meeting ID is not needed.
URL:https://cystinosis.org/event/cystinosis-sessions-mental-health/
LOCATION:TN
CATEGORIES:Gatherings/Conferences
ATTACH;FMTTYPE=image/png:https://cystinosis.org/wp-content/uploads/2020/03/Logo_Header.png
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