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X-WR-CALNAME:Cystinosis Research Network
X-ORIGINAL-URL:https://cystinosis.org
X-WR-CALDESC:Events for Cystinosis Research Network
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DTSTART:20250101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20260623T190000
DTEND;TZID=UTC:20260623T200000
DTSTAMP:20260619T101805
CREATED:20260618T145010Z
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UID:12690-1782241200-1782244800@cystinosis.org
SUMMARY:Family Zoom Night - June
DESCRIPTION:What’s on your mind? Let’s talk! \nJoin us on Tuesday\, June 23rd for a Cystinosis Zoom Night. This is a welcome space open to everyone impacted by cystinosis. We will share what is troubling us\, celebrate our wins\, ask questions\, and most importantly\, connect with others.  \n\nJune 23\, 2026\n7:00pm Eastern\nHost: Chelsea Meschke\, VP of Family Support \nJoin the Zoom call at https://tinyurl.com/m3emt2s7\n\nIf you have any questions\, email Chelsea at chelseam@cystinosis.org. We look forward to seeing you then.
URL:https://cystinosis.org/event/family-zoom-night-june/
CATEGORIES:Gatherings/Conferences
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20270722
DTEND;VALUE=DATE:20270725
DTSTAMP:20260619T101805
CREATED:20260429T155749Z
LAST-MODIFIED:20260505T234306Z
UID:9164-1816214400-1816473599@cystinosis.org
SUMMARY:2027 CRN Family Conference
DESCRIPTION:Join us in the heart of Uptown Charlotte.\nCRN Family Conferences draw some of the largest gatherings of cystinosis families in the world. The weekend-long agenda creates a space for connection\, learning\, and shared experience for each member of the family. \nSave the dates!\nTo stay informed about registration\, scholarships\, and updates\, email info@cystinosis.org or send us a DM on social media with CLT2027 and your email address. \nMore details coming soon\, be sure to check back as the program takes shape.
URL:https://cystinosis.org/event/2027-crn-conf/
LOCATION:Charlotte Marriott City Center\, 100 West Trade Street\, Charlotte\, NC\, 28202\, United States
CATEGORIES:Gatherings/Conferences
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ORGANIZER;CN="Cystinosis Research Network":MAILTO:info@cystinosis.org
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