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PRODID:-//Cystinosis Research Network - ECPv6.15.20//NONSGML v1.0//EN
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X-ORIGINAL-URL:https://cystinosis.org
X-WR-CALDESC:Events for Cystinosis Research Network
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DTSTART:20180101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20220618T090000
DTEND;TZID=UTC:20220618T140000
DTSTAMP:20260411T062033
CREATED:20220311T004635Z
LAST-MODIFIED:20220315T194711Z
UID:3662-1655542800-1655560800@cystinosis.org
SUMMARY:2nd Annual SC Golf Fundraiser
DESCRIPTION:Gail Potts and her South Carolina team are back at it! \nAfter a successful inaugural event last summer\, Gail continues to honor her daughter Deanna’s legacy with a golf fundraiser to benefit the Cystinosis Research Network (CRN). Proceeds from the event will support research\, family support and education for those impacted by cystinosis.    \nThis year’s golf outing takes place on June 18 at Wild Wing Avocet Golf Course and includes a barbecue lunch. $260 per team or $65 per player with a 9am shotgun start. Get started by registering online today. \nIf you can’t make it to Myrtle Beach\, there are additional ways to support Gail’s cause; you can sponsor a hole or contribute a raffle prize. She also has an Facebook fundraiser you can access here or donate on our web page. \nQuestions? Contact Elwin Miles at elwin.miles@gmail.com or 843-222-5974.  \nCheck out this highlights reel from the 2021 golf outing on our YouTube channel. \nThank you for visiting!
URL:https://cystinosis.org/event/2nd-annual-south-carolina-golf-fundraiser/
LOCATION:Wild Wing Avocet Golf Course\, 1000 Wild Wing Boulevard\, Conway\, South Carolina\, 29526
CATEGORIES:Fundraising Events
ATTACH;FMTTYPE=image/png:https://cystinosis.org/wp-content/uploads/2022/03/Screen-Shot-2022-03-10-at-7.25.04-PM.png
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20200502
DTEND;VALUE=DATE:20200503
DTSTAMP:20260411T062033
CREATED:20200221T065804Z
LAST-MODIFIED:20200414T221034Z
UID:2368-1588377600-1588463999@cystinosis.org
SUMMARY:57 Miles for Cystinosis
DESCRIPTION:
URL:https://cystinosis.org/event/57-miles-for-cystinosis-2020/
LOCATION:DE\, United States
CATEGORIES:Fundraising Events
ATTACH;FMTTYPE=image/png:https://cystinosis.org/wp-content/uploads/2020/02/Website_Header-1.png
ORGANIZER;CN="Clinton Moore":MAILTO:Clintonmoore1@aol.com
END:VEVENT
BEGIN:VEVENT
DTSTART;VALUE=DATE:20190909
DTEND;VALUE=DATE:20190910
DTSTAMP:20260411T062033
CREATED:20191010T153425Z
LAST-MODIFIED:20191010T153553Z
UID:2141-1567987200-1568073599@cystinosis.org
SUMMARY:Seed-Balls for Cystinosis
DESCRIPTION:(Left) Carter'(s last boat ride before G-J tube insertion. (Right) Look who turned 2! \nOver the last few years\, Carter’s family has taken a strong interest in monarch butterflies. Post diagnosis\, Grandmom (Carrie) knew she wanted to create an event to honor his resilient spirit. To celebrate Carter’s second birthday and new found love for butterflies\, they’ve partnered with Seed-Balls. This fundraiser sells clay\, compost\, and wildflower seeds to support pollinators AND proceeds benefit the Cystinosis Research Network. \n  \nUPDATE: Seed-Balls orders are now closed. If you are still interestd in supporting Carter and the cystinosis community\, you can make a secure donation here. \nThank you for your support!
URL:https://cystinosis.org/event/seed-balls-for-cystinosis/
LOCATION:South Carolina
CATEGORIES:Fundraising Events
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