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X-ORIGINAL-URL:https://cystinosis.org
X-WR-CALDESC:Events for Cystinosis Research Network
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DTSTART:20230101T000000
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DTSTART;TZID=UTC:20240729T150000
DTEND;TZID=UTC:20240729T160000
DTSTAMP:20240716T141813Z
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LAST-MODIFIED:20240716T141813Z
UID:4772-1722265200-1722268800@cystinosis.org
SUMMARY:Adult July Meetup - Disability and Cystinosis
DESCRIPTION:For Disability Pride Month\, the Adult Leadership Advisory Board is hosting a Zoom call to discuss living with cystinosis and disability. Their special guest is Hannah Creel\, a cystinosis warrior\, advocate and rare disease ally. \nRegistration is free to attend the event on July 29 at 3pm ET/2pm CT.
URL:https://cystinosis.org/event/adult-july-meetup-disability-and-cystinosis/
LOCATION:Virtual
CATEGORIES:Gatherings/Conferences
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BEGIN:VEVENT
DTSTART;TZID=UTC:20261006T200000
DTEND;TZID=UTC:20261006T210000
DTSTAMP:20260814T175721Z
CREATED:20260814T175721Z
LAST-MODIFIED:20260814T175721Z
UID:16003-1791316800-1791320400@cystinosis.org
SUMMARY:October Zoom Night - Cystinosis and Aging
DESCRIPTION:Aging with cystinosis brings new questions\, challenges\, and experiences. Co-hosts Cheryl and Hannah (living with cystinosis) will dive into topics inspired by ongoing conversations happening now across the cystinosis community. Please add to your calendars and follow us here and on socials for updates.\n\n\n\nOct 6 @ 8p et / 7p ct / 5p pt\nSave/use this link to join
URL:https://cystinosis.org/event/october-zoom-night-cystinosis-and-aging/
CATEGORIES:Gatherings/Conferences
ORGANIZER;CN="Cystinosis Research Network":MAILTO:info@cystinosis.org
LOCATION:https://cystinosis.org/event/october-zoom-night-cystinosis-and-aging/
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