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X-WR-CALNAME:Cystinosis Research Network
X-ORIGINAL-URL:https://cystinosis.org
X-WR-CALDESC:Events for Cystinosis Research Network
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DTSTART:20210101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20220116T130000
DTEND;TZID=UTC:20220116T180000
DTSTAMP:20260404T164330
CREATED:20220113T173052Z
LAST-MODIFIED:20220113T203131Z
UID:3560-1642338000-1642356000@cystinosis.org
SUMMARY:A Benefit for Elle
DESCRIPTION:Join The Hilltop and Dicks Family for a fundraiser to benefit sweet Elle. Elle was diagnosed with cystinosis and her family\, friends and community have supported her every step of the way. Her father is Jon Dicks\, President of the Cystinosis Research Network. You can read about the first few years of her journey as documented here in the Fall 2019 issue of The Cystinosis Advocate Newsletter. \nOn Sunday\, January 16th\, a local bar and restaurant will donate tips and a portion of sales to benefit Elle and her fight against cystinosis. If you are not in the Cincinnati area\, you can donate to the Cystinosis Research Network here. \nThank you for your support!
URL:https://cystinosis.org/event/a-benefit-for-elle/
LOCATION:The Hilltop\, 950 Pavillion Street\, Cincinnati\, OH\, 45202\, United States
CATEGORIES:Fundraising Events
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