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X-WR-CALNAME:Cystinosis Research Network
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X-WR-CALDESC:Events for Cystinosis Research Network
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DTSTART;TZID=UTC:20210716T180000
DTEND;TZID=UTC:20210718T154500
DTSTAMP:20260527T192429
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SUMMARY:2021 CRN Summer Online Conference
DESCRIPTION:Our biennial conference took place – virtually – July 16 – July 18\, 2021. \nWith the safety and health of our community in mind\, we shifted from an in-person event to a 100% online conference series. We are focused on providing an educational\, supportive\, engaging and fun experience. The beat goes on! \nThe conference is currently closed. However\, select sessions are available now on our YouTube channel and you can review the agenda here. \nOur original 2021 conference location of Nashville\, Tennessee will now host our face-to-face celebration in 2023. We hope to host more in person regional gatherings in 2022. Please be sure to check back on our website and social outlets for future announcements.
URL:https://cystinosis.org/event/announcement-2021-family-conference/
CATEGORIES:Gatherings/Conferences
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ORGANIZER;CN="Cystinosis Research Network":MAILTO:info@cystinosis.org
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DTSTART;TZID=UTC:20231029T203000
DTEND;TZID=UTC:20231029T213000
DTSTAMP:20260527T192429
CREATED:20231009T153826Z
LAST-MODIFIED:20231009T154754Z
UID:4555-1698611400-1698615000@cystinosis.org
SUMMARY:Halloween Trivia Night
DESCRIPTION:Test your knowledge of everything Halloween. \nALAB members are hosting a free\, online trivia night. \nOctober 29th at 8:30pm ET \nJump on the Zoom call for a chance to win a $25 gift card. Open to teens and adults – use this link at the time of the event; no registration necessary. \nWe hope to see you there!
URL:https://cystinosis.org/event/halloween-trivia-night/
CATEGORIES:Gatherings/Conferences
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BEGIN:VEVENT
DTSTART;TZID=UTC:20240826T180000
DTEND;TZID=UTC:20240826T190000
DTSTAMP:20260527T192429
CREATED:20240819T210516Z
LAST-MODIFIED:20240819T210516Z
UID:4788-1724695200-1724698800@cystinosis.org
SUMMARY:Adults August Meetup
DESCRIPTION:The Adult Leadership Advisory Board invites you to join their August meetup on Monday the 26th at 6p ET. This month’s topic: Mental Health – Trauma. \nSpecial guest is Kerry Heckman\, a licensed therapist from Seattle\, Washington. Register here to take part in the discussion.
URL:https://cystinosis.org/event/adults-august-meetup/
CATEGORIES:Gatherings/Conferences
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