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PRODID:-//Cystinosis Research Network - ECPv6.15.20//NONSGML v1.0//EN
CALSCALE:GREGORIAN
METHOD:PUBLISH
X-ORIGINAL-URL:https://cystinosis.org
X-WR-CALDESC:Events for Cystinosis Research Network
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X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20190101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20210501T160000
DTEND;TZID=UTC:20210501T170000
DTSTAMP:20260422T234943
CREATED:20210429T031943Z
LAST-MODIFIED:20210514T161523Z
UID:3175-1619884800-1619888400@cystinosis.org
SUMMARY:Cystinosis Session: May Video Call
DESCRIPTION:The Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on May 1st at 4pm ET. \nThe Cystinosis Session is open to all who would like to engage in and/or listen to conversation around the following topics: \n\nCaregivers. What happens when they pass?\nWills\nEmployment\nand More\n\nJoin Zoom Meeting\nhttps://zoom.us/j/2663523786\nMeeting ID: 266 352 3786 \nHere are instructions to help with downloading Zoom. We recommend completing these steps prior to the call. \n\nSecure access to a mobile device (PC\, Apple\, Android)\, desktop or laptop computer\nEnsure reliable internet connection\nDownload Zoom Cloud Meetings here or through your device’s app store\nClick on the link https://zoom.us/j/2663523786\nHave the Meeting ID ready: 266 352 3786. If you use the link provided\, the meeting ID is not needed.\n\nAdd the meeting to your calendar by clicking one of the buttons below. \n  \n  \n 
URL:https://cystinosis.org/event/cystinosis-session-may-video-call/
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END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20201205T120000
DTEND;TZID=UTC:20201205T133000
DTSTAMP:20260422T234943
CREATED:20201208T032935Z
LAST-MODIFIED:20201208T032935Z
UID:2847-1607169600-1607175000@cystinosis.org
SUMMARY:Cystinosis Sessions:
DESCRIPTION:Saturday\, December 5th at 12:00 pm ET\, the Adult Leadership Advisory Board (ALAB) will host a live video conference. This month’s topics include the holidays\, COVID-19 and eye drops. \nJoin Zoom Meeting\nhttps://zoom.us/j/2663523786\nMeeting ID: 266 352 3786 \nHere are instructions to help with downloading Zoom. We recommend completing these steps prior to the call. \n\nSecure access to a mobile device (PC\, Apple\, Android)\, desktop or laptop computer\nEnsure reliable internet connection\nDownload Zoom Cloud Meetings here or through your device’s app store\nClick on the link https://zoom.us/j/2663523786\nHave the Meeting ID ready: 266 352 3786. If you use the link provided\, the meeting ID is not needed.\n\nAdd the meeting to your calendar by clicking one of the buttons below.
URL:https://cystinosis.org/event/cystinosis-sessions/
CATEGORIES:Gatherings/Conferences
END:VEVENT
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