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X-WR-CALNAME:Cystinosis Research Network
X-ORIGINAL-URL:https://cystinosis.org
X-WR-CALDESC:Events for Cystinosis Research Network
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BEGIN:VTIMEZONE
TZID:UTC
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TZOFFSETFROM:+0000
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DTSTART:20210101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20220427T200000
DTEND;TZID=UTC:20220427T210000
DTSTAMP:20220420T231159Z
CREATED:20220420T231015Z
LAST-MODIFIED:20220420T231159Z
UID:3737-1651089600-1651093200@cystinosis.org
SUMMARY:Cystaran Eye Drops Virtual Town Hall
DESCRIPTION:On Wednesday April 27\, Leadiant Biosciences and AllianceRx Walgreens Prime invite the cystinosis community to attend a virtual Town Hall. With Cystaran eye drops back in stock\, the discussion agenda will cover recent approval and availability and an interactive Q&A session. Open to residents of the U.S.  \nQuestions can be submitted in advance to cgreeley@cystinosis.org or live during the Zoom session. Use this link to tune in on April 27 at 8:00pm ET / 7:00pm CT / 6:00p MT / 5:00pm PT: https://us06web.zoom.us/j/83279423967 Passcode: 451092
URL:https://cystinosis.org/event/cystaran-eye-drops-virtual-town-hall/
CATEGORIES:Gatherings/Conferences
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20250318T190000
DTEND;TZID=UTC:20250318T203000
DTSTAMP:20250305T204109Z
CREATED:20250305T203850Z
LAST-MODIFIED:20250305T204109Z
UID:4900-1742324400-1742329800@cystinosis.org
SUMMARY:Family Zoom Night - March
DESCRIPTION:Join us this March as Family Zoom Night returns! This welcoming space is open to anyone impacted by cystinosis to share experiences\, ask questions\, and connect with others. Led by our Vice President of Family Support\, Chelsea Meschke. \n\nMarch 18\, 2025\n7:00pm Eastern\nFor Zoom access\, visit https://tinyurl.com/t6zek7b2\n\nEmail Chelsea with any questions at chelseam@cystinosis.org.
URL:https://cystinosis.org/event/family-zoom-night-march/
CATEGORIES:Gatherings/Conferences
ORGANIZER;CN="Cystinosis Research Network":MAILTO:info@cystinosis.org
LOCATION:https://cystinosis.org/event/family-zoom-night-march/
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