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PRODID:-//Cystinosis Research Network - ECPv6.16.2//NONSGML v1.0//EN
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METHOD:PUBLISH
X-WR-CALNAME:Cystinosis Research Network
X-ORIGINAL-URL:https://cystinosis.org
X-WR-CALDESC:Events for Cystinosis Research Network
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X-PUBLISHED-TTL:PT1H
BEGIN:VTIMEZONE
TZID:UTC
BEGIN:STANDARD
TZOFFSETFROM:+0000
TZOFFSETTO:+0000
TZNAME:UTC
DTSTART:20200101T000000
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BEGIN:VEVENT
DTSTART;TZID=UTC:20210102T160000
DTEND;TZID=UTC:20210102T173000
DTSTAMP:20260528T103444
CREATED:20201230T155550Z
LAST-MODIFIED:20201230T155550Z
UID:2897-1609603200-1609608600@cystinosis.org
SUMMARY:Cystinosis Sessions: January Video Call
DESCRIPTION:All are invited to join as the Adult Leadership Advisory Board hosts our live January video call. This session will touch on the battles and victories associated with cystinosis. Everyone is welcome. \nTopics include but are not limited to: \n\nDifficulties coping during COVID and school\nTension between parents\, siblings and children\nALAB experiences with parental relationships\n\nJoin Zoom Meeting\nhttps://zoom.us/j/2663523786\nMeeting ID: 266 352 3786 \nHere are instructions to help with downloading Zoom. We recommend completing these steps prior to the call. \n\nSecure access to a mobile device (PC\, Apple\, Android)\, desktop or laptop computer\nEnsure reliable internet connection\nDownload Zoom Cloud Meetings here or through your device’s app store\nClick on the link https://zoom.us/j/2663523786\nHave the Meeting ID ready: 266 352 3786. If you use the link provided\, the meeting ID is not needed.\n\nAdd the meeting to your calendar by clicking one of the buttons below. We hope to see you then! \n 
URL:https://cystinosis.org/event/cystinosis-sessions-january-video-call/
CATEGORIES:Gatherings/Conferences
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210306T160000
DTEND;TZID=UTC:20210306T170000
DTSTAMP:20260528T103444
CREATED:20210223T234904Z
LAST-MODIFIED:20210223T234904Z
UID:3018-1615046400-1615050000@cystinosis.org
SUMMARY:Cystinosis Sessions: March Video Call
DESCRIPTION:All are invited to join as the Adult Leadership Advisory Board hosts a live video call on Saturday\, March 6th. \nThis “Cystinosis Session” will focus on the topic of relationships. \nJoin Zoom Meeting\nhttps://zoom.us/j/2663523786\nMeeting ID: 266 352 3786 \nHere are instructions to help with downloading Zoom. We recommend completing these steps prior to the call. \n\nSecure access to a mobile device (PC\, Apple\, Android)\, desktop or laptop computer\nEnsure reliable internet connection\nDownload Zoom Cloud Meetings here or through your device’s app store\nClick on the link https://zoom.us/j/2663523786\nHave the Meeting ID ready: 266 352 3786. If you use the link provided\, the meeting ID is not needed.\n\nAdd the meeting to your calendar by clicking one of the buttons below. We hope to see you then!
URL:https://cystinosis.org/event/cystinosis-sessions-march-video-call/
CATEGORIES:Gatherings/Conferences
ATTACH;FMTTYPE=image/png:https://cystinosis.org/wp-content/uploads/2020/03/Logo_Header.png
END:VEVENT
BEGIN:VEVENT
DTSTART;TZID=UTC:20210410T120000
DTEND;TZID=UTC:20210410T130000
DTSTAMP:20260528T103444
CREATED:20210410T051947Z
LAST-MODIFIED:20210410T051947Z
UID:3158-1618056000-1618059600@cystinosis.org
SUMMARY:Cystinosis Sessions: April Video Call
DESCRIPTION:Cystinosis Sessions: April Video Call \nAll are invited to join as the Adult Leadership Advisory Board hosts a live video call on Saturday\, April 10th. \nThis “Cystinosis Session” will cover but will not be limited to well being\, employment and relationships. \nJoin Zoom Meeting\nhttps://zoom.us/j/2663523786\nMeeting ID: 266 352 3786 \nHere are instructions to help with downloading Zoom. We recommend completing these steps prior to the call. \n\nSecure access to a mobile device (PC\, Apple\, Android)\, desktop or laptop computer\nEnsure reliable internet connection\nDownload Zoom Cloud Meetings here or through your device’s app store\nClick on the link https://zoom.us/j/2663523786\nHave the Meeting ID ready: 266 352 3786. If you use the link provided\, the meeting ID is not needed.\n\nAdd the meeting to your calendar by clicking one of the buttons below.
URL:https://cystinosis.org/event/cystinosis-sessions-april-video-call/
ATTACH;FMTTYPE=image/png:https://cystinosis.org/wp-content/uploads/2020/03/Logo_Header.png
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