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X-WR-CALNAME:Cystinosis Research Network
X-ORIGINAL-URL:https://cystinosis.org
X-WR-CALDESC:Events for Cystinosis Research Network
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DTSTART:20250101T000000
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BEGIN:VEVENT
DTSTART;VALUE=DATE:20260507
DTEND;VALUE=DATE:20260508
DTSTAMP:20260404T032558
CREATED:20250904T143805Z
LAST-MODIFIED:20260306T141348Z
UID:5071-1778112000-1778198399@cystinosis.org
SUMMARY:Cystinosis Awareness Day 2026
DESCRIPTION:Join the Cystinosis Awareness Day Movement! \nHonor our 2\,000+ warriors in the most meaningful way to you. Let’s educate\, raise awareness and raise funds.   \nMay 7th marks the 9th Annual Cystinosis Awareness Day (CAD). It started as a reference to the 57kb deletion in the CTNS gene\, the most common genetic cause of nephropathic cystinosis. Since then\, CAD has turned into a global day of recognition. \nThis year we ask – What is your 57?  \nIt is a call to action that can be big or small; 57 reflective words about the disease or 57 friend and family contributions\, 57 minutes of walking to 57 acts of kindness. \nWe encourage everyone to choose something meaningful they can share and spread the word. Every single action makes a difference in the fight against cystinosis. \nHow will you choose to honor this momentous occasion? \n(To donate via our secure\, tax-deductible form\, click here)
URL:https://cystinosis.org/event/cystinosis-awareness-day-2026/
CATEGORIES:Gatherings/Conferences
ORGANIZER;CN="Cystinosis Research Network":MAILTO:info@cystinosis.org
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