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X-WR-CALDESC:Events for Cystinosis Research Network
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UID:3533-1641657600-1641661200@cystinosis.org
SUMMARY:Cystinosis Sessions: January Video Call
DESCRIPTION:Saturday\, January 8th at 4:00pm ET\, join the Adult Leadership Advisory Board (ALAB). Discuss mental toughness and ways to stay positive with others within the cystinosis community. \nPlease note: this is not just for adults living with cystinosis\, everyone interested is invited to attend. \nTo join\, click: https://zoom.us/j/2663523786\nMeeting ID: 266 352 3786 \nHere are instructions to help with downloading Zoom. We recommend completing these steps prior to the call. \n\nSecure access to a mobile device (PC\, Apple\, Android)\, desktop or laptop computer\nEnsure reliable internet connection\nDownload Zoom Cloud Meetings here or through your device’s app store\nClick on the link https://zoom.us/j/2663523786\nHave the Meeting ID ready: 266 352 3786. If you use the link provided\, the meeting ID is not needed.\n\nAdd the meeting to your calendar by clicking one of the buttons below.
URL:https://cystinosis.org/event/cystinosis-sessions-january-video-call-2/
CATEGORIES:Fundraising Events
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BEGIN:VEVENT
DTSTART;TZID=UTC:20251118T193000
DTEND;TZID=UTC:20251118T203000
DTSTAMP:20251006T155754Z
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UID:5086-1763494200-1763497800@cystinosis.org
SUMMARY:Zoom night - November
DESCRIPTION:Join our next Zoom night on Tuesday\, November 18th.  \nCalls are open to everyone living with and impacted by cystinosis. It is a chance to connect\, ask questions\, and spend time together.  \n\nNovember 18\n 7:30p ET\nZoom link: https://tinyurl.com/7s2datft \n\nOur host is Chelsea Meschke\, CRN VP of Family Support\, licensed social worker\, and mom to two cystinosis warriors.  \nWe hope to see you there!
URL:https://cystinosis.org/event/zoom-night-november/
LOCATION:Zoom
CATEGORIES:Gatherings/Conferences
ORGANIZER;CN="Cystinosis Research Network":MAILTO:info@cystinosis.org
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DTSTART;TZID=UTC:20260115T193000
DTEND;TZID=UTC:20260115T203000
DTSTAMP:20251230T194727Z
CREATED:20251008T161439Z
LAST-MODIFIED:20251230T194727Z
UID:5088-1768505400-1768509000@cystinosis.org
SUMMARY:Zoom Night - January
DESCRIPTION:Cystinosis Community Zoom Night\nThursday\, January 15 at 7:30 PM ET\nZoom link: https://us06web.zoom.us/j/88075560653 \nJoin our next Zoom night for an evening of connection and conversation. These calls are open to everyone living with and impacted by cystinosis\, however\, this call will focus on new/newer diagnosed families. It’s a welcoming space to share experiences\, ask questions\, and simply spend time together. \nHosted by Chelsea Meschke\, CRN Vice President of Family Support\, licensed social worker\, and mom to two cystinosis warriors. \nSee you there!
URL:https://cystinosis.org/event/zoom-night-january/
CATEGORIES:Gatherings/Conferences
ORGANIZER;CN="Cystinosis Research Network":MAILTO:info@cystinosis.org
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BEGIN:VEVENT
DTSTART;TZID=America/New_York:20260811T200000
DTEND;TZID=America/New_York:20260811T210000
DTSTAMP:20260809T155950Z
CREATED:20260809T155950Z
LAST-MODIFIED:20260809T155950Z
UID:15523-1786478400-1786482000@cystinosis.org
SUMMARY:August Zoom Call
DESCRIPTION:August cystinosis Zoom call discussions will be shaped by your questions and priorities.  \nChelsea Meschke\, VP of Family Support\, is our host on August 11 at 8p ET / 7p CT / 5p PT. Use this direct link to join the meeting: https://tinyurl.com/mw2437j2
URL:https://cystinosis.org/event/august-zoom-call/
CATEGORIES:Gatherings/Conferences
ORGANIZER;CN="Cystinosis Research Network":MAILTO:info@cystinosis.org
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