Adult Leadership Advisory Board (ALAB)

ALBA callout 200The CRN is launching a new leadership committee.

The Adult Leadership Advisory Board (ALAB) will be made up of adults living with cystinosis. Ultimately, our program will develop programming and opportunity for adults affected by cystinosis. In order to set the program up for success, the CRN will begin by providing leadership training through a third party consultant.

Once leaders are in place, ALAB will focus on the issues and challenges facing our community. They will work with CRN board members and other organizations to address the issues, as well as, mentor incoming members.

If interested in applying to the ALAB program, please complete this application.

Applicants will be selected based on the online application, two references and a phone interview. Selected members must be able to commit to a minimum of two in-person meetings yearly and monthly phone meetings.

Our goal is to create a group that will not only benefit from the experience, but will contribute to both the Adult Leadership Advisory Board program and the entire cystinosis community. For questions, email This email address is being protected from spambots. You need JavaScript enabled to view it..


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