Medical Information

American Association of Kidney Patients
www.aakp.org

Cysteamine Eye Drops (NIH Eye Clinic + other pharmacies)
Locate Eye Drops

Cystinosis Central
medicine.ucsd.edu

Cystinosis Central
biochemgen.ucsd.edu

Cystinosis Information Brochure for Medical Professionals.

Emergency Information Form for Children with Special Needs

Cystinosis Chapter Emedicine.com
author.emedicine.com

European Rare Disease Organization
www.eurodis.org

Genetic Alliance
www.geneticalliance.org

Laboratory Conversion Site
dwjay.tripod.com

Laboratory Conversion Site w/ Table
www.vin.com

Med Help International
www.medhelp.org

Mitomed Diagnostic Laboratory at UC, Irvine - Blood Test Code for Cystinosis

National Kidney Foundation
www.kidney.org

NIH Office of Rare Diseases
rarediseases.info.nih.gov

National Library of Medicine
www.nlm.nih.gov

National Organization of Rare Disorders
www.rarediseases.org

Nephkids Website
cnserver0.nkf.med.ualberta.ca

Nephrology News & Issues
www.nephnews.com

OMIM Online Mendelian Inheritance in Man
www.ncbi.nlm.nih.gov
Johns Hopkins University--Good Cystinosis Information

Reuters Health
www.reutershealth.com

Spanish Language Health Information Site
www.cuidadodesalud.gov/enes/

Transplant Resources
www.transweb.org

Virtual Hospital
www.vh.org

WBC Cystine Handout - Orphan Europe
Need a White Blood Cell cystine level?

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