Medical Information

American Association of Kidney Patients

Cysteamine Eye Drops (NIH Eye Clinic + other pharmacies)
Locate Eye Drops

Cystinosis Central

Cystinosis Central

Cystinosis Information Brochure for Medical Professionals.

Emergency Information Form for Children with Special Needs

Cystinosis Chapter

European Rare Disease Organization

Genetic Alliance

Laboratory Conversion Site

Laboratory Conversion Site w/ Table

Med Help International

Mitomed Diagnostic Laboratory at UC, Irvine - Blood Test Code for Cystinosis

National Kidney Foundation

NIH Office of Rare Diseases

National Library of Medicine

National Organization of Rare Disorders

Nephkids Website

Nephrology News & Issues

OMIM Online Mendelian Inheritance in Man
Johns Hopkins University--Good Cystinosis Information

Reuters Health

Spanish Language Health Information Site

Transplant Resources

Virtual Hospital

WBC Cystine Handout - Orphan Europe
Need a White Blood Cell cystine level?


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