Get Involved

Get connected! Stay informed! Together we can find a cure!

Becoming a more active member in the cystinosis community can be very rewarding. The CRN is partners with a global network of caring families, concerned individuals and healthcare professionals working together in the fight against cystinosis. Here are some suggestions on how you can help support our vision to discover improved treatments and ultimately a cure.

Email This email address is being protected from spambots. You need JavaScript enabled to view it. to learn more about these opportunities. You can also call 866-276-3669 or email This email address is being protected from spambots. You need JavaScript enabled to view it..

Thank you for your interest!