Announcements

Leadiant Announces Cystaran Availability Through Walgreens Speciality Pharmacy (U.S.)

Leadiant Biosciences, Inc. is pleased to share with the cystinosis community that Cystaran® (cysteamine ophthalmic solution) 0.44% will be available for order early next week. We have heard your frustrations, and we apologize for the interruption in product availability you may have had. Getting Cystaran back to you has been our top priority. The product shortage was the result of unexpected delays with manufacturing.

On Monday, August 14, Walgreens Specialty Pharmacy will be contacting patients to schedule shipping and delivery of Cystaran. If you received 2 bottles, you will receive the balance of your bottles to make your monthly order whole. If you were placed on the back-order list and received 0 bottles, you will be shipped your full monthly supply.

We greatly appreciate the Cystinosis community’s patience and understanding while these manufacturing challenges were resolved.

For additional questions or to order Cystaran, please contact Walgreens Specialty Pharmacy at 1-877-534-9627.

Cystinosis Comic Book Series

 
comic book 2017

Sign Up Today

Receive your FREE copy of the Cystinosis comic book series by completing the form below. Once submitted, you will receive each installment in the trilogy as they become available.

International shipping is available. All books are printed in English. For questions, contact Katie Larimore at This email address is being protected from spambots. You need JavaScript enabled to view it. or 803-873-2139.

comic book 1

About the Artist

Kevin McCalla became passionate about storytelling, specifically comic books, at a young age. Diagnosed with Cystinosis at 13 months, Kevin has translated his experience living with Cystinosis into a relatable, enjoyable, and educational resource.

Kevin lives in Kerrville, Texas with his wife of 9 years, and their 4 cats.

 
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Walgreens Specialty Pharmacy Limit Fulfillment

On behalf of Leadiant Biosciences, Inc., I’m writing to inform you that we are experiencing a product shortage of Cystaran® (cysteamine ophthalmic solution) 0.44%, of which we hope will be a short-term impact on the patient community. Effective Monday, July 17, Walgreens Specialty Pharmacy will limit fulfillment of all new and refill prescriptions for Cystaran eye drops, to a maximum of two bottles per patient. The goal is to maximize the number of patients who continue to have access to Cystaran while product at Walgreens is limited. This action is necessary to accommodate a product supply interruption that the manufacturer of Cystaran is currently experiencing. We anticipate strong interest in learning more about this issue and concern among the patient and caregiver community. Leadiant understands the cystinosis community relies on Cystaran eye drops and we are committed to working diligently with the manufacturer of Cystaran to determine a solution as soon as possible. We will continue to provide you with updates as new information becomes available.

Best regards,

Lesli King
Director of Marketing Leadiant Biosciences

Sigma Tau Pharmaceuticlas, Inc. is now Leadiant Biosciences, Inc.

On Rare Disease Day, February 28, 2017, Sigma Tau announced it will now be known as Leadiant Biosciences. Leadiant says they will continue the commitment to patient communities. Read the full press release.

2017 Seedcorn Funding Program

The Cystinosis Research Network has collaborated with Cystinosis Ireland and Cystinosis Foundation UK to provide funding for Principle Investigators around the world interested in studying Cystinosis.

Cystinosis Rare Disease Day Campaign

Cystinosis

World Rare Disease Day (WRDD) is February 28, 2017. The global event was created to raise awareness for rare diseases like Cystinosis and highlight the impact on patients’ lives.

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