Announcements

Cystinosis Scholarship Program

Up to $50,000 in scholarships now available!

Global Genes and Horizon Pharma have partnered to bring the Cystinosis community up to $50,000 in continued education scholarships. This includes but is not limited to: college, graduate school, vocational programs, and enrichment courses.

Individuals living with Cystinosis could qualify for up $5,000 per person in funding. The award can be used for current, future AND previously paid tuition.

Scholarships will be awarded on a rolling basis to those with a genuine need for educational assistance.

Learn more at https://globalgenes.org/HNCS/.

Future by Design

A group of adults with Cystinosis formed the 'Future by Design' panel to improve tools and outcomes for future generations. Get a glimpse of their thoughts and aspirations in this video.

2016 Fall/Winter Newsletter Is Here!

The CRN 2016 Fall/Winter edition of the newsletter is now available. Visit the News/Newsletter link to catch up on the latest developments within the Cystinosis community.

Chandler's Chance for Cystinosis

An educational Cystinosis session and fundraiser being hosted by the Moore Family on Sat, Dec. 3.

Dr. Barshop UCSD Cystinosis Clinic

Dr. Bruce Barshop is hosting a Cystinosis Clinic at the University of California at San Diego on January 23, 2017. They are looking for a few additional participants to make the workshop a success. Meet other Cystinosis families and physicians. Interested? Contact Cristal at This email address is being protected from spambots. You need JavaScript enabled to view it..

2017 Family Conference Information

The Cystinosis Research Network is pleased to announce that its 2017 Family Conference will be held July 13 – 15 at the Snowbird Ski and Summer Resort located in Utah.

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