This was the first year our community celebrated Cystinosis Awareness Day on May 7th (5/7). This date was chosen to represent the most common cystinosis mutation: 57-kb deletion. Due to the overwhelming amount of love, well wishes and contributions received, the events tied to this day were a resounding success.
Two special fundraisers were created to honor Cystinosis Awareness Day. Follow the links to see how our walkers and hikers faired during their ambitious journeys: