New for 2019!
Spread cystinosis awareness on Rare Disease Day, Cystinosis Awareness Day and all year long!
We've transformed the cystinosis awareness ribbon into a temporary tattoo. Now you can "wear your rare" and help start important conversations.
Once your temporary tattoo arrives, start sharing! Post it for the world to see. if you are on social media, tag your ribbon photo with #mycystinosis to educate others about cystinosis and what it means to you (the good, the bad, and sometimes the ugly). Your post could help another family or individual trying to manage daily life with a rare disease.
Did you know? Our awareness ribbon was inspired by a structure standing 12 foot (3.66m) tall. It was thoughtfully created containing 2,000 green lights, one light for each person living with cystinosis. The outline of white lights represents those who have passed but remain part of who we are today. Now, this symbol of strength has been transformed into a temporary tattoo ready to travel the globe spreading awareness, education, support and love for our cystinosis warriors...thanks to you!
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