2016 Fall/Winter Newsletter Is Here!

The CRN 2016 Fall/Winter edition of the newsletter is now available. Visit the News/Newsletter link to catch up on the latest developments within the Cystinosis community.

Chandler's Chance for Cystinosis

An educational Cystinosis session and fundraiser being hosted by the Moore Family on Sat, Dec. 3.

Dr. Barshop UCSD Cystinosis Clinic

Dr. Bruce Barshop is hosting a Cystinosis Clinic at the University of California at San Diego on January 23, 2017. They are looking for a few additional participants to make the workshop a success. Meet other Cystinosis families and physicians. Interested? Contact Cristal at This email address is being protected from spambots. You need JavaScript enabled to view it..

2017 Family Conference Information

The Cystinosis Research Network is pleased to announce that its 2017 Family Conference will be held July 13 – 15 at the Snowbird Ski and Summer Resort located in Utah.

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Cystinosis Comic Book Series

comic book 1

Sign Up Today

Receive your FREE copy of the Super Cysteamine Team comic book series by completing the fields below. Upon registration, you’ll receive the first installment in the trilogy and be on the list for comic books two and three when they are available.

International shipping is available. All books are printed in English. For questions, contact Katie Larimore at This email address is being protected from spambots. You need JavaScript enabled to view it. or 803-873-2139.

comic book 1

About the Artist

Kevin McCalla became passionate about storytelling, specifically comic books, at a young age. Diagnosed with Cystinosis at 13 months, Kevin has translated his experience living with Cystinosis into a relatable, enjoyable, and educational resource.

Kevin lives in Kerrville, Texas with his wife of 9 years, and their 4 cats.

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2016 CRN Scholarships Awarded

The CRN has awarded $1,000 college scholarships to three deserving students with the Cystinosis community.

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