Cystinosis Rare Disease Day Campaign


World Rare Disease Day (WRDD) is February 28, 2017. The global event was created to raise awareness for rare diseases like Cystinosis and highlight the impact on patients’ lives.

Make Your Mark

This year, we invite you to make your mark by building Cystinosis awareness and education from the comfort of your own home. Here’s how:

packet Sign up below for a FREE Cystinosis Aware packet containing a sticker, instructions, and rare disease fact.
camera Once received, snap a photo showing off your sticker.
packet Share your photo on social media with #CystinosisAware and #WRDD2017 along with a Cystinosis or rare disease fact.

Good News: If you’ve previously signed up for our comic book series, a sticker packet will automatically be sent to you. International shipping is available.

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For additional ways to support World Rare Disease Day visit


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