Category: Adults

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Adult Complications of Nephropathic Cystinosis: a Systematic Review

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Nephropathic Cystinosis: Late Complications of a Multisystemic Disease

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CRN Adult Care Excellence (ACE) Initiative – Executive Summary

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CRN Adult Care Excellence (ACE) Initiative – Results and Recommendations

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Nephropathic Cystinosis in Adults: Natural History and Effects of Oral Cysteamine Therapy

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Family Strategies for Living with Rare Disease: The Experience of Cystinosis

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