Expert guidance on the multidisciplinary management of cystinosis in adolescent and adult patients
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Transition of Young Adult Kidney Transplant Recipients 
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Grip Strength in Adults and Children with Cystinosis
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Adult Complications of Nephropathic Cystinosis: a Systematic Review
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Nephropathic Cystinosis: Late Complications of a Multisystemic Disease
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CRN Adult Care Excellence (ACE) Initiative – Executive Summary
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CRN Adult Care Excellence (ACE) Initiative – Results and Recommendations
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Nephropathic Cystinosis in Adults: Natural History and Effects of Oral Cysteamine Therapy
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Family Strategies for Living with Rare Disease: The Experience of Cystinosis
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