Adult Leadership Advisory Board

Cystinosis Sessions: Alternative Therapies, Exercise & Activities

Join hosts from the Adult Leadership Advisory Board (ALAB) for the Cystinosis Sessions video conference series – LIVE- on...

Youth to Adult Transition Part 2- Q &A Panel with Adults Living with Cystinosis Part two of the youth...

Youth to Adult Transition Part 1- Discussion with Medical Professionals The third podcast from the ALAB will focus on...

The Cystinosis Sessions live video series continues on Saturday, August 1st from 12:00pm – 1:30pm ET. The Adult Leadership...

In the third episode of “Cystinosis Sessions,” a live video conference series created by adults living with cystinosis, topics...

The third live video conference takes place June 6 at 12:00 pm ET. The Adult Leadership Advisory Board (adults...

Tune into the ALAB's Podcast series as we discuss how to cope with loss and grief.

Join the LIVE video conference session on May 2nd!

Join the first video conference session created by the Adult Leadership Advisory Board - Saturday, March 21 at 4pm...

Welcome to our podcast series – Cystinosis Rare: A Journey into the Unknown. Lead by the Adult Leadership Advisory...