Saturday, September 11th at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB) for a Zoom discussion. TOPICS The...
read moreThe Cystinosis Research Network has announced new board member updates. At the last Board Meeting, the nominating committee proposed...
read moreThe Adult Leadership Advisory Board (ALAB) invites you to join the conversation on August 7th at 4pm ET. The...
read moreYouth to Adult Transition Part 2- Q &A Panel with Adults Living with Cystinosis Part two of the youth...
read moreYouth to Adult Transition Part 1- Discussion with Medical Professionals The third podcast from the ALAB will focus on...
read moreThe third live video conference takes place June 6 at 12:00 pm ET. The Adult Leadership Advisory Board (adults...
read moreIn order to think of what Cystinosis Awareness Day means to me I had to think about what cystinosis...
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