adults

Cystinosis Sessions: July Video Call

Founding ALAB member, Brian Ensor shares his first-hand experiences with the AstraZeneca Vaccination Study. Join the Zoom call Saturday,...

Clinical researchers from the Stanford Neuromuscular department are looking for individuals who have been diagnosed with Cystinosis Myopathy, to...

AVROBIO is looking for perspectives from the cystinosis community. They will be conducting a small focus group to help...

The Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on July 10th at 4pm ET. TOPICS ...

The Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on June 5th at 4pm ET. The...

The Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on May 1st at 4pm ET. The...

Cystinosis Sessions: April Video Call All are invited to join as the Adult Leadership Advisory Board hosts a live...

All are invited to join as the Adult Leadership Advisory Board hosts a live video call on Saturday, March...

Thanks in part to volunteers at both the 2017 and 2019 CRN Family Conferences, this study was able to...

We are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...