Amgen has partnered with Believe Limited and the Cystinosis Research Network to bring back the third annual, Speak Up,...
read moreThe long awaited Cystinosis Advocate Newsletter is here. Choose from research updates, advocacy efforts, family stories, events, cystinosis support...
read moreA global initiative has been announced: the Cystinosis Warrior Impact Program. Our goal is to support, help or find...
read moreThe Pediatric Academic Societies (PAS) connects thousands of pediatricians and other health care providers worldwide. This international gathering, delivered...
read moreLearn more about gene therapy as it relates to the cystinosis community. Dr. Paul Grimm from from Stanford University...
read moreA letter from Fernanda Copeland, Executive Director, Head Patient Advocacy & Engagement at AVROBIO March 24, 2020 We hope...
read moreThe person I’m most grateful for is my sister Jennifer. Six and a half years ago my labs were...
read moreThe CRN is a proud participant in Giving Tuesday – a global movement encouraging people to “do good.” This...
read moreGlobal Genes 2019 RARE Patient Advocacy Summit was attended by members of our cystinosis community. Natasha Faisca and Clinton...
read morePeople from around the world joined the CRN Family Conference this summer to help “Ring in the Future”. Here...
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