All are invited to join as the Adult Leadership Advisory Board hosts a live video call on Saturday, March...
read moreThe goal of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on...
read moreAll are invited to join as the Adult Leadership Advisory Board hosts our live January video call. This session...
read moreSaturday, December 5th at 12:00 pm ET, the Adult Leadership Advisory Board (ALAB) will host a live video conference....
read moreJoin the Adult Leadership Advisory Board (ALAB) for the Cystinosis Sessions video conference series – LIVE- on Saturday, November...
read moreJoin hosts from the Adult Leadership Advisory Board (ALAB) for the Cystinosis Sessions video conference series – LIVE- on...
read moreYouth to Adult Transition Part 2- Q &A Panel with Adults Living with Cystinosis Part two of the youth...
read moreYouth to Adult Transition Part 1- Discussion with Medical Professionals The third podcast from the ALAB will focus on...
read moreWe are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...
read moreThe Cystinosis Sessions live video series continues on Saturday, August 1st from 12:00pm – 1:30pm ET. The Adult Leadership...
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