ALAB

Cystinosis Sessions: October Video Call

Saturday, October 2nd at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB) for a Zoom discussion. Chat with...

Saturday, September 11th at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB) for a Zoom discussion. TOPICS The...

The Cystinosis Research Network has announced new board member updates. At the last Board Meeting, the nominating committee proposed...

The Adult Leadership Advisory Board (ALAB) invites you to join the conversation on August 7th at 4pm ET. The...

The Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on July 10th at 4pm ET. TOPICS ...

The Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on June 5th at 4pm ET. The...

The Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on May 1st at 4pm ET. The...

Cystinosis Sessions: April Video Call All are invited to join as the Adult Leadership Advisory Board hosts a live...

All are invited to join as the Adult Leadership Advisory Board hosts a live video call on Saturday, March...

The goal of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on...