Tag: ALAB

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ALAB Podcast Release: Coping Mechanisms

The Adult Leadership Advisory Board (ALAB) continues their podcast series “Cystinosis Rare: Journey Into the Unknown” with episode 8...

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New Slate Announced: CRN Board

The Cystinosis Research Network has announced new board member updates. At the last Board Meeting, the nominating committee proposed...

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Open Registration – 2020 Cystinosis Virtual Meetups

We are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...

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Adults with Cystinosis Lead Video Conference Series

In the third episode of “Cystinosis Sessions,” a live video conference series created by adults living with cystinosis, topics...

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