The Adult Leadership Advisory Board (ALAB) created custom designed bandanas for your furry friends. Your donation provides support for...
read moreFounding ALAB member, Brian Ensor shares his first-hand experiences with the AstraZeneca Vaccination Study. Join the Zoom call Saturday,...
read moreDiet and exercise will be the next topics of conversation during the Cystinosis Sessions quarterly Zoom call. Join our...
read moreThe Adult Leadership Advisory Board (ALAB) continues their podcast series “Cystinosis Rare: Journey Into the Unknown” with episode 8...
read moreSaturday, January 8th at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB). Discuss mental toughness and ways to...
read moreSaturday, October 2nd at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB) for a Zoom discussion. Chat with...
read moreSaturday, September 11th at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB) for a Zoom discussion. TOPICS The...
read moreThe Cystinosis Research Network has announced new board member updates. At the last Board Meeting, the nominating committee proposed...
read moreThe Adult Leadership Advisory Board (ALAB) invites you to join the conversation on August 7th at 4pm ET. The...
read moreThe Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on July 10th at 4pm ET. TOPICS ...
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