Join the Adult Leadership Advisory Board (ALAB) for the Cystinosis Sessions video conference series – LIVE- on Saturday, November...
read moreJoin hosts from the Adult Leadership Advisory Board (ALAB) for the Cystinosis Sessions video conference series – LIVE- on...
read moreWe are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...
read moreYouth to Adult Transition Part 2- Q &A Panel with Adults Living with Cystinosis Part two of the youth...
read moreYouth to Adult Transition Part 1- Discussion with Medical Professionals The third podcast from the ALAB will focus on...
read moreThe Cystinosis Sessions live video series continues on Saturday, August 1st from 12:00pm – 1:30pm ET. The Adult Leadership...
read moreIn the third episode of “Cystinosis Sessions,” a live video conference series created by adults living with cystinosis, topics...
read moreThe third live video conference takes place June 6 at 12:00 pm ET. The Adult Leadership Advisory Board (adults...
read moreTune into the ALAB's Podcast series as we discuss how to cope with loss and grief.
read moreJoin the LIVE video conference session on May 2nd!
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