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2023 Family Conference – Nashville

Save the Date! The CRN Family Conference is back…and in-person for the summer of 2023. Join us July 13...

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Cystinosis Session: May Video Call

The Adult Leadership Advisory Board (ALAB) is hosting a Zoom video call on May 1st at 4pm ET. The...

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Mental Health Survey from Children’s Friend Inc.

Children’s Friend Inc. is studying the experiences in and barriers to accessing mental health services for families. For the...

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Open Registration – 2020 Cystinosis Virtual Meetups

We are going virtual! The CRN is introducing a series of virtual meetups taking place this fall. Available to...

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Cystinosis Sessions: Mental Health

The forth live video conference hosted by the Adult Leadership Advisory Board (ALAB) will discuss Mental Health, Anxiety, Depression,...

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Inspirational Stories

Our community is small but mighty! Hear about our triumphs.

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Your contribution funds research for improved treatments, and ultimately, a cure for cystinosis.

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