Interim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.
read moreOn March 8, 2021, the Cystinosis Research Network announced Tim Wyman as the new interim President. The position was...
read moreThe goal of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on...
read moreMembers of the CRN’s Medical Advisory Board and Scientific Advisory Board weighed in on their thoughts regarding the COVID-19...
read moreYouth to Adult Transition Part 2- Q &A Panel with Adults Living with Cystinosis Part two of the youth...
read moreGlobal Genes 2019 RARE Patient Advocacy Summit was attended by members of our cystinosis community. Natasha Faisca and Clinton...
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