An Open Letter to the Cystinosis Community
Interim CRN President, Tim Wyman, has written an open letter to the cystinosis community. You can read it here.
read more
The CRN Welcomes Tim Wyman
On March 8, 2021, the Cystinosis Research Network announced Tim Wyman as the new interim President. The position was...
read more
Rare Disease Day 2021
The goal of Rare Disease Day is to raise awareness amongst the general public and decision-makers about rare diseases and their impact on...
read more
COVID-19 Vaccine & Cystinosis: Statement
Members of the CRN’s Medical Advisory Board and Scientific Advisory Board weighed in on their thoughts regarding the COVID-19...
read more
Podcast: Youth to Adult Transition (part 2)
Youth to Adult Transition Part 2- Q &A Panel with Adults Living with Cystinosis Part two of the youth...
read more
Cystinosis Perspective: RARE Patient Advocacy Summit
Global Genes 2019 RARE Patient Advocacy Summit was attended by members of our cystinosis community. Natasha Faisca and Clinton...
read more
English▼
Arabic
Bengali
Chinese (Simplified)
Czech
Danish
Dutch
Filipino
Finnish
French
German
Greek
Haitian Creole
Hawaiian
Hebrew
Hindi
Hungarian
Indonesian
Italian
Japanese
Korean
Latin
Lithuanian
Norwegian
Persian
Polish
Portuguese
Punjabi
Russian
Serbian
Slovak
Slovenian
Spanish
Swahili
Swedish
Thai
Turkish
Ukrainian
Vietnamese
Welsh