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Cystinosis Sessions: July Video Call

Founding ALAB member, Brian Ensor shares his first-hand experiences with the AstraZeneca Vaccination Study. Join the Zoom call Saturday,...

On May 7, 2022 we celebrate the 5th Annual Cystinosis Awareness Day. This is an opportunity to educate the...

In the third episode of “Cystinosis Sessions,” a live video conference series created by adults living with cystinosis, topics...

The third live video conference takes place June 6 at 12:00 pm ET. The Adult Leadership Advisory Board (adults...

Mark your calendars for the 2021 CRN Family Conference!

Join the LIVE video conference session on May 2nd!

Join the first video conference session created by the Adult Leadership Advisory Board - Saturday, March 21 at 4pm...

The person I’m most grateful for is my sister Jennifer. Six and a half years ago my labs were...