All are invited to join as the Adult Leadership Advisory Board hosts our live January video call. This session...
read moreJoin the LIVE video conference session on May 2nd!
read moreHow is the COVID-19 pandemic impacting our cystinosis community? A survey was created to help answer this question. The...
read moreA letter from Fernanda Copeland, Executive Director, Head Patient Advocacy & Engagement at AVROBIO March 24, 2020 We hope...
read moreJoin the first video conference session created by the Adult Leadership Advisory Board - Saturday, March 21 at 4pm...
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