coronavirus

Live Video Conference: Dependence, Education & Employment

Join the LIVE video conference session on May 2nd!

How is the COVID-19 pandemic impacting our cystinosis community? A survey was created to help answer this question. The...

A letter from Fernanda Copeland, Executive Director, Head Patient Advocacy & Engagement at AVROBIO March 24, 2020 We hope...

Join the first video conference session created by the Adult Leadership Advisory Board - Saturday, March 21 at 4pm...