coronavirus

Cystinosis Sessions: September Video Call

Saturday, September 11th at 4:00pm ET, join the Adult Leadership Advisory Board (ALAB) for a Zoom discussion. TOPICS The...

All are invited to join as the Adult Leadership Advisory Board hosts our live January video call. This session...

Join the LIVE video conference session on May 2nd!

How is the COVID-19 pandemic impacting our cystinosis community? A survey was created to help answer this question. The...

A letter from Fernanda Copeland, Executive Director, Head Patient Advocacy & Engagement at AVROBIO March 24, 2020 We hope...

Join the first video conference session created by the Adult Leadership Advisory Board - Saturday, March 21 at 4pm...