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Live Video Conference: Dependence, Education & Employment

Join the LIVE video conference session on May 2nd!

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57 Miles for Cystinosis

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Feedback Request: Cystinosis + COVID-19 Survey

How is the COVID-19 pandemic impacting our cystinosis community? A survey was created to help answer this question. The...

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Update: AVROBIO & COVID-19

A letter from Fernanda Copeland, Executive Director, Head Patient Advocacy & Engagement at AVROBIO March 24, 2020 We hope...

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Cystinosis Sessions: Coronavirus, Medication

Join the first video conference session created by the Adult Leadership Advisory Board - Saturday, March 21 at 4pm...

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